Welcome to HealingWell Hockeymom1!
I had never heard of IGH but did a quick read and will certainly keep reading. Pretty interesting but I'm sure quite frustrationg for you for the last few years. Not knowing what is ailing you yet knowing something isn't right is a tough position to be in!
I don't believe we have anyone else with IGH but maybe some of the lurkers do and they will finally write in seeing as someone else has broken the ice .
In any case, what medications are you on? How are you feeling and how often do you see the docs? What part of the world do you live in? I am in California and have AIH (autoimmune hepatitis). I am only on Imuran now and have been off pred since Dec 2008. My LFTs are spot on normal and can't look any better!
I look forward to hearing more about IGH!
Co-Moderator - Hepatitis
AIH Jan 2007
CMV June 2008
Raynaud's February 2010
Meds: Azathioprine 100mg & Ursodiol 250mg BID