We are a group of patients and caregivers affected by various liver diseases.
Ziff is right. Best to start a new thread. Copy and paste this into the new one and
I will lock ths.
You can call it the same name if you like.
There are good articles and links in the resources at the top of our page.
Mental changes are VERY typical for those with failing livers. It is called hepatic encephalophy. HE for short.
We hear caregivers describe HE as confusion, fantastical thinking, and often oppositional or grouchy behavior.
My partner had HE bad before a liver transplant. He made me cry day after day. He got his transplant and that behavior was gone. As a matter of fact, he can't remember almost a whole year of his life or causing me all those tears. Fortunately I found ths site and realized he didn't mean anything by it, couldn't control himself.
I'm glad I learned not to listen to him, not to let it break my heart. Maybe you could have a family meeting and help educate others that HE is a real thing. That the liver is not processing properly and wastes are not being sent on to kidneys and bowel. Instead they circulate through the whole body to the brain...and that's no good...as you know.
If her family and friends knew she is not. doing this on purpose, they could step back a bit and not react. I'm reminded of my sis who has dementia...she is a handful sometimes...but we know not to react, rather distract and do what we need to do to keep her safe and cared for.
Best to your family.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
Post Edited (MamaLama) : 3/30/2016 8:11:41 PM (GMT-6)