Hi to another Florida Healing Well Member:
Sorry to hear of your life long struggle with Hep C and other medical issues. Sounds like a lot for 26 year old!
My partner, Mike, has had Hep C since about 1970, and needed transplant in May 2011. He is 9 months post surgery now and doing well.
He got Hep C from using drugs as a kid and then drank his liver into liver failure over the years. He has been clean since 1970's and alcohol free since September 2010. He also had a tumor on his liver found just before his transplant.
Post tranplant his liver enzymes are doing really well. BUT his genotype 1a is rearing its head already, like Connie. His Viral Load was 69Million at his last blood draw.
Like Connie, thay are waiting to start any new treatment. We were told that the protocols are not well established for the new drugs for post transplant patients...trials not complete or some such.
Mike knows that the Hep C will have its way with his new liver if he doesn't get treatment, but for now, it is a waiting game. He is not complaining too much of the fatigue, attributing his tiredness to post surgical recovery. He doesn't want to think too much about treatment as he felt SOOOO awful during the Interferon/Ribavarin treatment (he had to stop after 6 months because platelets were so low and he was basically a mess psychologically). Then with the End Stage Liver Disease in 2010-2011 another horror show, he can't see himself volunteering for another round of THAT. Or not just yet.
And when he does get signed up for treatment, he is going to ask for the big anti depression pills this time!!!!!
Again, I'm sorry you are having all this trouble. And hope your regime turns out to be manageable. Come often and share.
Mama Lama aka Carol from Florida
Post Edited (MamaLama) : 2/3/2012 2:37:21 PM (GMT-7)