Welcome to HealingWell. I'm sorry to hear your health was poorly managed. Did you have a biopsy when you were first diagnosed? I used to only go in for bloods every 3 months but my numbers were perfect and that's why I'm only going in for bloods every 6 months now. I have an annual bone density and abdominal ultrasound.
On the plus side, you are seeing a better doctor now. Sadly, what's done is done. That said...having cirrhosis doesn't mean you will have to have a transplant in the future. It all depends on if you can keep the AIH under control. Type 2 is more common in children and since you were diagnosed as a child (I have a teenager (had her before diagnosis) and she hates when I consider her a child ), it isn't surprising. Yes, the old doctor should have run different antibody tests to try to pinpoint type. It is a rare disease and there are still a lot of docs who don't know much about it.
As per having your own children, that will have to wait and if you are stable and you and your doc thinks it's OK to try, then you'll have to make sure you see a high risk gynecologist. There are other means to having a child than bearing your own and putting yourself at risk for further illness. During pregnancy most autoimmune diseases calm down but after birth there is a much higher likelihood of a flare. So adopting a child who desperately needs a loving home may very well be something that would benefit you and that child . Again, that's something to think of later. you're still young and your health is what's important. Worrying is extremely unhealthy and more so for the immunocompromised...stress is a flare risk!
If your AIH is stable then you can do anything you want to do. Please don't forget to exercise if you are well enough...even just walking every day or as often as you can during the week will benefit you.
I have to get busy with work but I'll check back later!
Co-Moderator - Hepatitis
AIH Jan 2007
CMV June 2008
Raynaud's February 2010
Meds: Azathioprine 100mg & Ursodiol 250mg BID