It was requested for me to post as a new topic
This is Mrs Traywick. First of all thank you so much for the thoughts and prayers. It turned out that my husband had significant brain damage and would never regain consciousness. I had to make the decision to remove him off the machine and let him go. He was taken off the ventilator about
12:00pm July 3rd. We are waiting for him to pass now.
He was diagnosed with Hep C in 1996 which he contracted from jailhouse tattoos. In 2000 he was diagnosed with cirrhosis. He tried the interferon treatment but his body couldn't tolerate it. His blood count dropped down too much is what we were told and his Dr told him to not take any more of the meds. In 2009 we found out he had chronic liver failure and was put on dialysis in may 2012. He has been hospitalized many times, for either Hep or high ammonia level. As a matter of fact the first time he was hospitalized for HE he was in ICU for over a week most of which he was kept in a medically induced coma. That was when we found out about
his kidneys. Bless his heart, he suffered with diabetes, HBV, kidney failure, and liver disease.
He did not have health insurance so getting him help was nearly impossible. I did not make enough money to take him to the Dr on a regular basis. For a short time we qualified for Medicaid when I lost my job. That was a blessing, but it didn't last long since our daughter turned 18. For about
ahead he scarcely saw a dr. Then we moved to a county that offers hospital district insurance (a program for poor people with no insurance and don't qualify for Medicaid.) That was a huge blessing!
Oh I failed to mention that all the while we were fighting the government for his disability. Finally we got a hearing date and he was granted SSI benefits in March of 2012. We were so relieved to have the insurance. We got to work getting dr appointments and going through the system to work our way to liver and kidney transplant. Just didn't make it.
I am thankful for blogs like this one. I spent a lot of time looking up information on ESLD. Because I didn't have much access to Drs most of the time I turned to the Internet for information on what to expect and advice on how to care for my husband. If someone with ESLD is showing signs of high ammonia level, it could be a brain bleed. Hallucinating is a good sign of brain bleed.
God Bless the people who suffer with this disease and God Bless the caregivers. It isn't easy for the victims or the caregivers.
Post Edited By Moderator (hep93) : 7/8/2012 7:34:25 AM (GMT-6)