Mike had a big follow up appointment this week -- 2 months after his liver biopsy showed "Acute Rejection/Moderate grade."
My take on all that has been going on with Mike: poor kidney function numbers, blood in stool, elevating Hep C viral load, uncontrolled hypertension, grinding fatigue and shortness of breath:
MEDS -- All the meds have side effects (causing the above in combination?)
HEP C -- Is the root of all evil
Anemia -- Not unusual for people with liver transplants (or liver disease in general)
They keep changing his meds and doses to overcome one or another symptom, then something else gets out of normal range.
He saw nephrology, cardiology, and hepatology/transplant in the last days. Nothing is WAY out of normal, just bubbling along at "not quite right."
Is the rejection episode over? Can they control his BP with new meds? Has stopping the Cellcept been the reason the chronic diarrhea resoslved? Are his kidneys going to be okay? Does he have AVMs in his small bowel again that bleed intermittently? Etc.
But nothing AWFUL is the matter.
Except that he has aortic stenosis and that will require a valve replacement down the line. That scares me a lot. But so far, so good. they check by echo cardiogram every 6 months.
Surgical repair of HUGE incisional hernia on November 1st
Hep C treatment in 2013.
Three choices for treatment:
Combo -- Interferon and Ribaravin -- 6 months
Incivic/Combo -- 12 weeks Incivic/6 months combo
New one with the numbers 77?? -- no Interferon and Ribavarin -- VERY HIGH success statistics
- Insurance, what will Medicaid pay for (likely combo only)? If that...we are having problem with Medicaid.
- Jackson is participating (as of very recently) in studies for post transplant protocols for new treatments. You are on your own for drug payments if insurance wont cover.
- For the studies Mike has to be post rejection eposide 6 months...so he could not start until March 2013.
His transplant surgeon says Mike should try the combo first and if that doesn't work again, they could try the new new new one, with no Interferon and Ribavarin. The doctor is anxious about it being still not approved by FDA given Mike's other problems (especially cardiac problems as the new drug has extra cardiac risks).
A lot to digest. One minute Mike says he'll skip the treatment all together and ride it out. and the next minute he wants to be in the study.
We'll need to talk this over some more.
Mama Lama aka Carol