Hi, H&C. It certainly sounds like a stroke to me. However, I don't see the connection to HE. As you know, HE is caused by ammonia build-up in the brain. A stroke is caused by a burst blood vessel in the brain, commonly due to high blood pressure, but there are other causes...HE not being one of them. I have seen people post about
having restless legs or twitching, but not from a stroke or TIA. Our member, David, had a brain hemorrhage at one point, but I don't think it was due to his liver disease. Maybe he will chime in here.
How close are you to a major transplant center? The center isn't at the smalll, rural hospital is it? I surely hope not. I agree that it would probably be wise to move closer to a major center. If it weren't for my transplant and ongoing problems from Hep C, I'd probably be in Sarasota or Clearwater (FL) right now. I stay in Jacksonville to be close to Mayo. I'm actually at Jax Beach and Mayo is 12 min. away by car. I use Mayo for most of my medical care, not just liver related.
If you should experience symptoms of a stroke again, get someone to drive you immediately to an ER. There is medication to prevent the effects of a stroke, like droopy face on one side, verbal impediment, and dragging one leg. It is called "the Golden Hour" as the med has to be administered within an hour of symptoms.
If you do have a transplant, you are going to need a caregiver for awhile. You also need someone to take you to appts. For some, they require a caregiver to be with you. There are many tests prior to transplant, during the evaluation, but Mayo does most of them again after transplant. I'm having most all of them done again for my 1-year anniversary (on Sat.) with my new liver. After I was discharged following TP, I had to go 3 x a week for blood work. You could probably have that done locally, if they coordinate with your Transplant Coordinator or hepatologist.
Get the best care you can. Also, make sure you are getting some nutrition in the form of Boost or Ensure, or Carnation Breakfast Essentials, since you are not eating much.
Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland
Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL
Post Edited (hep93) : 10/25/2012 11:56:06 AM (GMT-6)