Long days, Brian...so much to learn, figure out, fight for, wait...you must be torn up. How is your little one doing?
Even at #1, it could be some time. Mike was #1 for about 8 days. I'd taken him to the ER "again." He said he couldn't go on, was giving up, and I took him in. The TP hepatitis doc sat at his head, held his hand, and whispered to him. Promised him a liver, if he would just hold on...promised it would be days not weeks or months anymore. And Mike held on.
Praying for a good outcome for her too.
Does she have a name? I pray better when I know.
Little one is doing well. Just got her started back on rice now that we are settled again; she was going through formula like crazy. I'm looking into local nanny listings to see if I can find someone reliable who can watch her while I visit the hospital, because of their no child visitor policies. When my wife transplants, I will definitely need a sitter to visit.
My wife's name is JaeGyu; simply pronounced JQ.
She called tonight, very frustrated. She was complaining about
them "making a hole" and being uncomfortable. I tried to explain that the doctors are doing what they need to do to treat her. It was hard to understand her. I talked to the nurse, who was very cordial and friendly. She explained that the last shift doc had put an NG tube in her nose to suck the excess from her stomach because she was having issues with vomiting again. She already has a KO tube in the other nostril for feeding. I would be pissed off too if I had tubes in my nose. The nurse confirmed that they did x-rays to confirm the tubes were both placed properly. She later was able to get my wife some pain meds, and she promptly fell asleep.