My heart is so sad to hear about
Angie's husband passing. I know you hard a long hard road, Angie, and this must be so difficult. My heart breaks for you and I pray for strength for you in the coming days, weeks and months.
Also, as far as I can tell, isn't Densgirl's husband in the hospital, too, and not doing well? Barbara, I also pray that you have peace and strength for what lies ahead.
I have been following this forum, mostly silent for the past couple of months. Heartbroken when reading the sad news, rejoicing when hearing the good, like when Brian's wife got her transplant.
My husband had a very bad HE episode that left me drained and shaken around Christmas time. His mental capacities were very compromised. He couldn't complete sentences, he became very agitated and compulsive. But he managed to pull through and we have both been able to enjoy and appreciate him being stable for about
the last 6 weeks.
However, last week, both his legs started swelling, pretty badly. We've had the hospice doctor out here twice monitoring it. They were red and hot, but that has mostly subsided without antibiotics. But the swelling seems to be getting worse. The doc is reluctant to put him on diuretics because he reacted badly last time he was on them. Got severely dehydrated and electrolyte imbalance. He couldn't sleep last night he was in so much pain. I just gave him more pain meds, and now he has managed to fall asleep.
Because of other posts on here, I have asked him if his testes were swollen and he insists they aren't. But I have caught him "adjusting" a little more than normal, so who knows what that might mean?
I'm just getting nervous, because normally his edema will sort itself out within a few days if he keeps his legs up. And now it's not but getting worse. The swelling is from his feet, all the way up into his upper thighs. He was diagnosed decompensated over two years ago, right about
when Angie's husband was. He has Hep C, congestive heart failure, and is not going to get a liver transplant. I'm worried.
Caretaker to husband who has Hep C, cirrhosis of the liver, hepatic encephalopathy, untreatable edema, aortic heart valve blockage, diabetes and congestive heart failure. Admitted into at-home hospice care in Sept 2012 because of worsening symptoms.