Hi, Jasper's mom, and welcome to the forum! It's a pleasure to meet you and read your very interesting and literate post.
As MamaLama/Carol said, you are doing the right things. I am so sorry about
your mom's passing and your dad's illness. I know it's a very stressful time for you, but you are keeping your head on straight.
I had a liver transplant at Mayo Jacksonville, FL, in Oct. '11, due to hep C causing hepatocellular carcinoma. I had it previously (a huge tumor in the right lobe, that was 12 x 11.5 cn. in my rt. lobe, in Sept. '05, which had metastasized to the inferior vena cava (diagnosed at Shands Jacksonville, which gave me no hope.) I sought a second opinion at Mayo and they saved my life. They have kept me alive for 7 yrs., which I wouldn't have had otherwise. I am sure you have discovered that there are many risk factors for hep C. There are also other causes of liver disease requiring transplant.
I have had many problems since transplant, especially after they had to
open me up again in March '12, due to an infection. I currently have a very large
opening in my midriff that has
opened up for a 2nd time in the incision line and is scheduled for surgery this coming Mon. I also have some pleural effusion in my rt. lobe, and will have a thoracentesis on Tues., following discharge the same day. If a person has a difficult case, such as mine, Mayo or Mass. General transplant centers seem to be top notch, to name two. There are not long waits for tests, appts., etc., at Mayo Jax. However, they no longer do living donor transplant, though they might in Rochester. I don't think they are doing them in AZ Mayo, either.
I suggest you read the information in the pinned folder/topic at the top of the page entitled Hepatitis Resources. There are many types of hepatitis (liver inflammation), not just viral. In that folder, at the end of the info, I have attached a list of correctly spelled medical terms related to liver disease, and even some "regular" words, which I add to occasionally.) I don't give the definitions in most cases, but if you know the correct spelling (though you seem to be doing fine so far) you can look them up more easily. Medline is a good source for that. Google, too, but be careful about
Wikipedia. I am stating this, not just for you, but also for the lurkers.)
If you haven't already checked them out, I also suggest that you look in the Caregivers Sharing thread and also the Loss thread. You will receive a lot of support in both threads.
Good move in removing guns from the house. My dad shot himself to death when I was in my 20s and it shattered my life and those of my stepmother and half-sisters. My reaction was worse (IV drug use in the late 60s, which caused my hep C, not diagnosed until '93.)
If you have any questions, feel free to ask--someone here should be able to answer. And please do keep us updated on your dad's status and which transplant center you decide upon.
Again, I am so sorry that you and your dad are dealing with this difficult situation, but there is always hope. I am (still living) proof of that.
Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland
Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL
Post Edited (hep93) : 5/11/2013 6:08:46 PM (GMT-6)