Good Morning IW,
There are two things at work here.
Liver Disease and
Hep C Treatment
Both have bad mental/nervous symptoms.
Both are worse if the person has underlying psych problems. My Mike is prone to snarky episodes though he is 95% a nice guy normally, so when he was on treatment and when he was in End Stage for the liver disease, he was a horrible grump! He was also obnoxious when drinking before all this started! They gave him Effexor, but that didn't help much, or was at too low a dose.
But, the good news is that when he got off the Hep C treatment (Ribavarin and Interferon) he gradually got better...mental health wise, not liver wise as he did not complete the treatment and thus never cleaned the virus.
He was good mentally for another 7 years!!!! Just the 5% grumps and the bad attitude when he drank too much.
When the Hep C got bad, his mental status failed again. That time was different though. He was argumentative and mean but more confused a lot of the time. Lost things, blamed me for hiding them. Screamed at me. One time he told a 5 year old grandchild that there was no Santa and she should stop fooling herself. How awful is that??? He can't to this day figure out why he would have said such a thing. This time it was Hepatic Encephalopathy and they medicate for that with Lactulose and Xifaxan. He was almost bearable when he was on the Xifaxan! At one point his insurer didn't want to cover it and I was all over them about
it, wrote letters, called my congressman, etc. He got the meds!
And get this he has amnesia about
both years....he can't recall doing any of the stuff we tell him about
. He had me in tears daily...until I joined this forum and realized I was one of a zillion others facing the same situation. I got stronger just posting!
After transplant he is his normal 95% nice self. He has his days...mostly if he doesn't feel well or if he is frightened that he is getting sick again. He still has Hep C and is hoping to take a non interferon based treatment before he is End Stage again.
I'm so sorry this is going on. And I know that
1. he is a really sick dude right now
2. and you and your son are in a bad place
MamaLama aka Carol from Florida
Forum moderator - Hepatitis
Partner received liver transplant May 1, 2011, Jackson Memorial, Miami, FL
Post Edited (MamaLama) : 5/20/2013 1:43:03 PM (GMT-6)