Hi, the biopsy results are in...there is no blockage and the stent seems to be okay
Syxx, why do you say that "hopefully it's the hep C, or something they can fix?"
I would think that if Hep C was the culprit, that would be worse.
As it turns out, it looks like it IS the Hep C and I was praying that it WASN'T. Maybe I'm missing something here. Stinks that this being holiday weekend, he won't see the doctor until Tuesday.
His blood work came back and if he was awaiting a new liver, his MELD is 20 today.
Bilirubin 22.8 INR 1.0 and Creatinine 1.2
Also, his cyclosporine is 49 today and is supposed to be between 100-400. It was 29 earlier in the week and they all thought it was a mistake. I figured it wasn't, judging by the way he looks and feels. So when I saw today's results posted, I told him to call the coordinator. He said no so I called myself. Secretary put me on hold and 2 minutes later the person came to phone and told me "oh, I was just going to call you" Hmm....how convenient, I'm beginning to wonder about
Mayo after all. Seems like I have to scrutinize everything in order to get them to act. So she told him to up his cyclosporine from 150 twice daily, to 250 twice daily. And she ordered lab work for Monday. Glad I called and not waited til Tuesday.
David, I am going to get with my other brother and together we will tag team Richard and convince him to stick with MGH. He shouldn't feel he needs to stay with Mayo "as promised" for the year. That was something he told them when he was sick, they shouldn't hold him to it. He would have SO much more support up in Mass, not to mention the cost of flying here all the time. After airfare, rental car, meals, etc....he just can't keep doing this and neither can I.
Connie, I'm sorry to say I don't have as much faith in Mayo as I once did. I just want the best for him and it seems he has kinda "removed himself" from the situation, who can blame him. So I will have to be his torch-bearer for as long as it takes.
Thanks for hearing me vent :)
Post Edited (Mae be here) : 5/25/2013 2:39:47 PM (GMT-6)