Thank you everyone for your responses. I will go ahead and answer some of the questions posed.
My mom is 64, my dad will be 76, although he looks/acts much younger than that.
My mom has, as she said "acquiesced" and rather than the treatment program is going to attend Alanon meetings 3x a week. However, due to her physical condition I do not see how that will happen. Last week she had a blood transfusion, is still on the meds, and even after that her numbers were off. Today they brought a hospital bed into my mom's bedroom at home. She had to rest in the middle of making the bed she is that weak. She cannot make it more than 10 days without a paracentesis. They go back to the liver specialist on the 5th so I think we'll find out more then. Her prognosis, as far as I know, is still 3 months.
Before needing the transfusion and her decline her MELD score was 24-26 I believe. I cannot remember the exact number. Every time she leaves the hospital she declines. I think in the family meeting I will suggest hospice once again just because of my dad's job and he is alone right now helping take care of her.
Since I have not found a job yet (recent college grad) I am debating about
moving in with him after she passes (Yes, I am thinking of the future) to help both of us deal with it together and help one another. He will need help cleaning the house up, etc. Perhaps that is once again putting someone ahead of myself, but I just don't want him to be alone at that time. My family is worried about
him when my mom passes.
The family meeting is the 12th and I have not yet seen my mom since all of this has occurred. Honestly, I am afraid to see her and get that image stuck in my mind. I know she is very yellow, swollen, and weak right now. I just don't know how I'll react knowing she is dying when I see her. Is that selfish? I plan to attend the meeting, but I'm just hesitant and unsure what to expect.
I guess that's it for now. Thank you again for your responses. I will take a look at the other forums suggested.
Post Edited By Moderator (hep93) : 5/28/2013 11:58:19 AM (GMT-6)