The insurance company called yesterday. My husband, themister, was approved for transplant eval at Mayo AZ by the insurance company. The person calling will be his SW for the insurance company. She was terrific, upbeat, informing. Told me Mayo AZ called them two days prior for approval and they approved. BTW, she gave me the name of a company called Needymeds.org to try and get the Xifaxin co-pay help with. We shall see.
As you that followed this drama, themister was in a rural state Medicare Advantage program waiting for our home to sell. Mayo, AZ did not accept that insurance product. (Feb 2013). He was just weeks post TIPS and we decided to make our move to AZ earlier than planned (in order to get special condition sitch' to change Medicare).
I know he has a long way to go, but just knowing he has been approved is major.
Update on the swelling. I got the TEDS stockings. Thanks so much to you all for the suggestions and advice. His edema is really low and back under control. Moving put a strain on diet, and I probably was not monitoring his sodium as closely. Difficult to be a perfect caregiver and do all things for him, me, and long distance move....but he survived ;) His HE is better than it was, but not perfect. Some hallucinations and he smells things that are not there. Anyone do that with HE?
Also, we got into the HMO doctor (remember, Mayo suggested we switch to this AARP MedicareComplete UnitedHealthCare HMO product, but we must deal with an HMO for his day to day stuff. This plan has a transplant network accepted at Mayo, AZ, most important right now. The doctor was a lovely lady from India, she took one look at his box of medical records I copied for the just two years,( as they requested). She did a triage type appt *giggles*. Mentioned something about her given 15 mins per appt, so she wanted to get him RX's and specialists first. She asked what specialists were needed, for a list of meds to fax to our RX plan, made arrangments for the Gastro/Hepa to get these records and rush an appt with him. I feel pretty darned lucky today. This move was hell, but we are both confident it will be worth it. So far, so good!
Hugs to all of you special folks. themiz