Hi everyone. I'm from Australia, am a carrier or hep b and was diagnosed with HCC in 2008 at the age of 22. I was told that it was very rare for a female at my age to be diagnosed with this type of cancer.
I was diagnosed after what we thought would be a liver resection, which turned into an
open close surgery. They found that I had a 14 cm tumour protruding from the left side of my liver, with a few nodes on the ride side also, which made it impossible to resect. My AFP was 140,000 also.
Few months later I had the TACE treatment, that helped shrink it a little. I had that twice, until they found that my tumour wasn't responding anymore and my only other hope would be to start on the trial that was on at the time. I was started on a medication called Nexavar (sorafenib). I have been on this medication since 2009. This medication lowered my AFP from 140,000 to just 74. It was tough at the start and I suffered some side effect from this drug. I suffered and still do from hand and foot syndrome and ulcers on my tongue. Although its not as bad as it was back then.
I've been in great Health apart from the permanent blisters on my fingers and feet. This year we noticed my AFP creeping up again... It's now at 900. Although its no where near as high as it was, I'm still worried that it means the medication I'm on wont help control the tumour anymore. I am also experiencing tightness, pains and discomfort on the left side of my abdominal area, under my ribs...which I'm positive is my tumour. They're not sure what's causing it as it only happens once a month and lasts for 3-4 days. I'm guess it has something to do with my menstrual cycle as it happens right before I'm due. I wanted to know if anyone else has experienced this before? Also wanted to know if there is anyone else on the forum that's been diagnosed in their early 20's.
Thank in advance for taking the time to read my post, it's taken me years to find something on the net like this.
Post Edited By Moderator (hep93) : 6/1/2013 8:25:50 PM (GMT-6)