I sent a note to our moderators and some folks who have posted their email on their profile that I have been having trouble posting. Three separate times I wrote long posts with lots of personal details, etc to have them zoomed off without actually posting. Only one person said they had had some glitches.
I was so frustrated, because this part of my life is important to me. I feel like the forum helped me stay sane pre and post transplant and that Mike really needed a held together caregiver.
Since transplant, he has had some bumps that I share, but mostly I continue here because I like it and hope, in some small way, I can ease another family's journey through the horror of liver disease.
AND, I know that the stages are out there looking to happen all over again -- with Mike and I both older and wiser, but it won't be fun. He still has Hep C and he still has lots of symptoms.
So, I'm sorry I didn't post much yesterday. So far this morning my cursor isn't flopping around or deleting the posts as fast as I write them!
I got a note from Ziff about things to try to make this right and I updated my virus protection and logged all the way off both the site and my computer and this morning seems much better. Thanks AZ!
Let's hope it stays good!
Stuff at our house: Mike's cardiologist upped his beta blocker again as his BP up again. He has had a body temp of 97 or so since before transplant that has crept up to over 99 this week for some reason, the first time since transplant. We are keeping an eye on that. His most recent viral load was lower again. Next check ups in July. I hope he can go to 6 months checks for the cancer and TP and cardio appointments.
Have a good day,
Forum moderator - Hepatitis
Partner received liver transplant May 1, 2011, Jackson Memorial, Miami, FL