@ Hep93...when my mom was diagnosed with HCC, the tumor was 9mm, that was in June of 2012. Her meld at that time was 12. The ONLY way her meld would be able to jump to a score of 22 was once the tumor hit 2cm. It didn't grow to 2cm until she was scanned again in November. It was only when the HCC tumor grew to 2cm, that my mom was given the exception points/meld of 22. Then, 3 months later her score jumped to 25 in February and thankfully, she was blessed with a new liver in April. Tomorrow, she will be 3 months post transplant
I wonder if that differs (meld/exception points for HCC) depending where in the country you are listed?
@ Susie...my mom also had to wait until the HCC grew to 2cm. It grew from 9mm to 2cm in less than 5 months. Our hepatologist had told us that HCC typically doubles in size between 3-6 months. If I remember correctly, your HCC took years to grow...ate they sure its HCC and not a regenerative nodule? Did you ever have a biopsy? Fingers crossed you get "the call" soon!!!
@ retired12...I understand you being hesitant to tell your sister about
the HCC. My mom didn't tell my dad and brothers until 4 months after she was diagnosed with the HCC. First, she was scared of their reactions and scared that they would be upset/depressed. Second, her doctors didn't want to treat the HCC tumor until it was 2cm because they wanted her to get the meld of 22 (to be higher on the list), so she made a choice to not tell them until the tumor reached the 2cm mark. I agreed with my mom's decision...we come from a very close family and was also scared to see my dad's and brother's reactions. They actually handled it well, once they of course shed their tears and had a ton of questions, etc. Everyone handles it their own way and you will know when the time is right. Keep up the good work on quitting smoking...you can do it!!!