Hi everyone, I was diagnosed with alcoholic cirrhosis about
a year ago (they performed a biopsy). I didn’t take it seriously (if I ignore it, it will go away) and didn’t take the time to find out about
it until I spent about
a month in ICU in early 2013. I had still been drinking, not wanting to face the fact that I was killing myself slowly and painfully.
I checked myself into treatment and have been attending AA 3-4 times a week since. I have a sponsor and good support group and feel very blessed in that respect. I’ve been sober for 7 months.
I was originally seeing a GI and have recently begun to see a hepatologist. Two times so far. The last was right before my 6 months, and I go again the end of Nov. I have blood work done once a month. The Dr. has me on aldactone, nadalol, and xifaxan, which has helped with the HE. I have good and bad days with that and it mostly affects my sleep, but I also get pretty fuzzy sometimes. I try not to sleep during the day, but I still cannot fall asleep until 4am most nights.
I am also having a hard time gaining weight. I drink ensure and eat a pretty healthy and low sodium diet. I just can’t eat as much as I used to. Plus, I’m afraid to have that horrible fluid retention that I had for so long after the hospital. I’m jaundice but feel good physically and emotionally most of the time. My meld score just went from 20 to 18 (it’s max was 23 before I quit drinking). That seems so high to me for how I feel – but what do I know.
I have had some pre-op tests done (cardiology). Most recently a MRI (or MRA?) of my abdomen and they found an abnormal nodule??? They said they will rescan in 3 months instead of 6. I am assuming the next time I see the Dr. there will be more information about
possibly moving forward with getting on a transplant list. We have talked about
transplant before but I wasn’t 6 months sober yet. I don’t know – I’m new to all of this…
I just thought that I would introduce myself to everyone and say thank you for all of the things that you post. They have helped quite a bit. And, I’m sure I have a lot more to learn.
Post Edited By Moderator (hep93) : 10/25/2013 11:36:50 PM (GMT-6)