Hello again, I have spoken with the nurse again and the wording is <12 DETECTED
I'm sorta emotional because I have anxiety as it is and its been stressful since last year, I feel good and positive but after 1 month my level was down from 4.7 million to just 79 and now I am told its <12 DETECTED
so really what the hell am I supposed to think?
The specialist told the nurse "it's detected but very low, all we can do because of this new assay is wait till Allen come's on July 31st for his next blood test and then we will know for sure"
The nurse has told me in her experience with 1000's of patients if the virus is still in my system we WILL see it return in the next 12 weeks without a doubt, the numbers will be higher than "less than 12" and worse case scenario, I will have to do another treatment....which I hope is not the case.
The reason why the confusion, I guess before they could detect down to <100 and then it was <50 and then <35 and now we have <12 so they say this is a VERY sensitive test and it may be detecting remnants and that WHY I must repeat my VL in 12 weeks. The tell me their is no sense in repeating the VL test again right now as we will more than likely get the same result but 12 weeks will be a large enough window that if its there it will show its ugly face.
Apparently my specialist is the best we have in my city though I don't always feel the same about
her, I really have no choice but to stick it out and control my emotions for another 12 weeks or so until my next VL test and when I get this results which should be in the first week on August, I have an appointment with the specialist August 13th 2014 and hopefully it come back undetected this time.
Last but not least, I don't want others considering this treatment to think this is a failure because it isn't, I went from a viral load of 4.7 million down to <12 and my ALT went from about
680 down to 19 so obviously something worked and these results for all we know could mean that I am actually cured.
Just as MikeLama has his level change from <15 Detected to <15 Undetected in a week's time the same could also have happened to my blood since May 1st and it may actually be undetected but unfortunately I have to wait 12 weeks for positive confirmation.
Stay positive everybody, I'm not gonna let these results control my life or ruin my summer or my vacation I have planned next month...I'll beat this sooner than later
Sovaldi + Ribavirin Treatment began February 6th 2014 - 12 weeks of treatment. After 4 weeks treatment VL has dropped from 4.7 Million to *79* - I've finished treatment April 30th 2014 .
VL level as of May 1 2014 is "<12 DETECTED" - Next VL test July 31 2014 and my results may change to undetected.
Post Edited (AllenM) : 5/15/2014 11:41:33 AM (GMT-6)