Posted 4/21/2014 7:33 AM (GMT -6)
During this Hep C, Alcoholic Cirrhosis, Heptocellular Carcinoma, Transplant, Post TP Hep C treatment adventure, Mike was also diagnosed with Hemachromatosis...very high iron counts. They were doing some evaluation and planned to start periodic phlebotomy..blood letting.
This was a new twist for us and we read everything in sight. We encouraged close blood relatives, especially the grandchildren, to have the genetic testing as there is a kind of hemachromatosis that IS genetically transmitted. Mike did the testing too. It was not covered by insurance and somewhat expensive, but we thought it was important. He DOES NOT carry the usual genetic marker for hemachromatosis, but one of the grandchildren does, recessively, on the father's side...who is not a blood relative of Mike's!!!
And then Mike's very high iron counts came back into normal range. So the Hemachromatosis came and went as quicly. Later in the wild ride of Mike's path to transplant, he was dangerously anemic instead. And they found his small bowel was "leaking." They were able to put a scope down there doing a "double baloon enteroscopy" and plugged those leaks that were caused by AVMs... The whole 6 month adventure was too wierd.
So, my point...Hemachromtosis can be transient. And yes, how odd.