Sorry I have not posted much. I've been pretty busy with life, but wanted to share the latest with my last appointment on March 9th as we as questions and answers I had from doctor's visit:
HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
Total Bili: 0.5mg/dL
Dir Bili : 0.1mg/dL
Ind Bili : 0.4 1mg/dL (the lab changed the way this reports now.. within normal)
ALT (SGPT) - 49 (down 5 points)
AST (SGOT) - 31 (went down 2 points. StillNormal)
Creatine - 1.15 mg/dL (went back to normal)
Uric Acid - 6.9 mg/dL (went up, still normal)
Calcium - 9.8 mg/dL (went down but within normal)
Phosphorus - 3.8 mg/dL (also went down, still within normal)
pH - 5.5 (up .5 and still within normal)
CK - 134 U/L (up 11 points but still normal)
Parathyroid Hormone - 51.3 pg/mL (Once again, went up... as I mentioned, this keeps fluctuating.)
My 2 biggest concerns:
1.) Cholesterol keeps rising... I need to exercise more, this is for sure. It wasn't listed as high just yet but it's borderline.
2.) My Protein was listed as "+1" and high. Not sure why, I had mainly fruits and veggies all week.
Now onto the important doctor's questions and answers I got:
1.) Asked why the HBV LOG 10 went up .02 from one month to another. He said it was not significant and was probably just the sensitivity of the lab at the time and I should not be concerned. He'd be more concerned if it went up a full point or more.
2.) Asked him the actual meaning of my HBV DNA, whether it meant that less than 29 is detected and I could be undetected or if it meant I was still detectable but it was less than 29.
He gave me an answer pretty much identical to what I expected. He admitted that the lab the clinical trial was using was not the best and there were better labs that report as low as 10 or even 5. He said I could be any number between 1 and 29 on the lab.
I then mentioned to him that I think it's taking longer than I expected to clear and he kind of gave me a "This is where I was expecting you to be, I did say a year and it's almost a year. So as far a I'm concerned, you're on target for what we expected but all of this is just a reminder to me and you that this virus is still in you and even when undetectable, it will still live in your liver. So until that changes/you seroconvert, you need to stay on the medication or else this could come right back!"
I did say "I'm being optimistic that I'm going to clear the virus this year!" and he kind of smiled at me and told me "you could, anything is possible! the power of positivity is important!"
3.) Asked him why my AST and ALT keep fluctuating so much. He looked at me and said it's most likely from a fatty liver, as I am 30-40lbs over weight. He said that at some point, my body may have just leveled off at these numbers and so it's floating right around there. He wasn't concerned with anything serious
4.) Lastly, the new study doctor I was given, decided to take it upon herself to order me an Ultrasound. She said it should have been done every 6 months, etc. I asked about
the Fibroscan and she said if it ever came down to it, she'll send me for it but right now sees no need. She did say that she had a patient who was picked up as having cirrhosis of the liver on a Fibroscan and because he displayed no symptoms of having such, they sent him for a biopsy which came back normal... odd, right?
I also had an appoint on March 30th, and had the following:
Saw the doctor today (appt window was scheduled for April but meds ran out so I had it today instead). He told me that it looks like the FDA will be approving this new formula very soon. He didn't give me a timeframe but said possibly within the year.
I had a LOT of blood drawn, since it's 1 year mark. I'll know results in a few weeks. I also had a DEXA scan done 2 weeks ago, still no results. They send to another lab for analysis. Should know within a week.
I did get results of Ultrasound back... on it, it said "unremarkable liver. No abnormalities. 13.7cm in size". That's good news indeed! They did find a cyst on each kidney and a 6mm cyst on gallbladder. I was told nothing to be concerned about, as they are fairly common, but to just watch it in a year.
After all this, I now go in every 2 months instead of every month. Clinical trial ends 2017.