My Hep B Clinical Trial Log

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luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 1/16/2015 11:11 AM (GMT -7)   
Wanted to share more numbers and update:

HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
HBV LOG 10: 1.46 (It went up from last test? WHY?)
Total Bili: 0.6mg/dL (Increase of .3)
Dir Bili : 0.1mg/dL
Ind Bili : "Pending result"
ALT (SGPT) - 54 (went up 9 points)
AST (SGOT) - 37 (went up 7 points)
Creatine - 1.13 mg/dL
Uric Acid - 7.4 mg/dL
Calcium - 9.6 mg/dL
Phosphorus - 3.8 mg/dL
pH - 5.0
CK - 236 U/L
Parathyroid Hormone - 38.9 pg/mL
HBsAg - Positive
Hep Be Ag - Negative

So my comments: Concerned about my Log10 going up. Any ideas why? Usually it's been going down a lot and this is the first time it went up. My liver enzymes keep fluctating. So does my parathyroid hormone. I included stuff related to my kidneys, which seem normalized. As for my CK, Creatine kinase is an enzyme found in the heart, brain, skeletal muscle, and other tissues. Increased amounts of CK are released into the blood when there is muscle damage. I wonder what this is about? Odd it went up. I have to wonder how accurate this lab is, considering there is still a "pending result". Any thoughts?
Started TDF vs. TAF Clinical Trial on 04/11/2014 for Hepatitis B
Screening Viral Load: 22,300,000 IU/mL
Baseline Viral Load: 18,400,000 IU/mL
Viral Load 28 Weeks into Treatment: 54 IU/mL

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4803
   Posted 1/16/2015 12:56 PM (GMT -7)   
I'm not up on my Hep B stuff...but I'm sure you are thrilled with viral load. How are you feeling?

Mike's kabs, are up and down post TP and post Hep C treatment where he remains undetected.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 1/20/2015 2:35 PM (GMT -7)   
MamaLama,
I'll be thrilled when the Viral Load says "undetected" to be honest. This is the closest it has been. I'm feeling a LOT better than I did this time last year though, so that's a good sign. Still some lingering things which I'd like to fix and am working towards it. Hopefully I'll be cured soon! I pray for all those who suffer!
Started TDF vs. TAF Clinical Trial on 04/11/2014 for Hepatitis B
Screening Viral Load: 22,300,000 IU/mL
Baseline Viral Load: 18,400,000 IU/mL
Viral Load 28 Weeks into Treatment: 54 IU/mL

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 2/9/2015 11:48 AM (GMT -7)   
Been a while since I posted here, so I wanted to share:
 
So here is my monthly update. This lab this month did not include a lot, since the schedule did not have it. Here is what I can provide though and some comments:


HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
Total Bili: 0.3mg/dL (decrease of .3)
Dir Bili : < 0.1mg/dL
Ind Bili : < 0.3 1mg/dL
ALT (SGPT) - 54 (Stayed the same within a month, still high)
AST (SGOT) - 33 (went down 4 points. Back to Normal)
Creatine - 1.25 mg/dL (went up a, .01 above normal)
Uric Acid - 6.3 mg/dL (went down, still normal)
Calcium - 10.1 mg/dL (went up a little but within normal)
Phosphorus - 4.6 mg/dL (also went up, still within normal)
pH - 5.0
CK - 123 U/L (back to normal. last month was high)
Parathyroid Hormone - 34.1 pg/mL (went down instead of up.. has always fluctuated between down and up each month so I was expecting it to go up. Glad it did not)

I guess my concerns are as follows:

HBV DNA says < 29 HBV Detected. Does this mean that the DNA is still in my body or is the wording wrong? According to the labs, <29 was the goal as showing "undetected" so I'm thinking this just means "Less than 29". Even so, my doctor suspected a year it would take for undetected. I need to ask him next appointment

HBV LOG was not reported. It was in every lab. I'm wondering if the lab missed it or if it was not reported because it's at 0 now. I'm curious to see what happens at my 1 year mark (I'm ahead of schedule too, so 1 year is in March even though it should be in April) with the tests to check for HBSAG and such.

On a side note, my study doctor quit in December and I have a new one. I liked the old one as he knew the drugs very well because of HIV Patients. But he made a few comments towards me comparing me to HIV Patients, when I was never infected with such (Thankfully!). I reminded him this was not the case with me. Apparently he quit on the spot one day right in the new year.

Vickiek
Regular Member


Date Joined Apr 2014
Total Posts : 23
   Posted 2/9/2015 8:03 PM (GMT -7)   
Hi luckyman, glad to hear that your doing good, hope for undetected for you next month. I go in late march for my blood work and hope all is going down with me also. Do you still have ringing in the ears and join pain? I hope my ringing in the ears go away but I really don't feel that bad so I must not be that bad. Vickie

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 2/9/2015 8:40 PM (GMT -7)   
Hey Vickie. The ringing in the ears is still there but very faint. I'm still not sure if this is caused by the virus or is being caused by my bite being uneven after dental work. I may be getting my bite adjusted at some point but have to see.

Joint pain is there but a lot less severe then it used to be. Exercise and rest both help.

Vickiek
Regular Member


Date Joined Apr 2014
Total Posts : 23
   Posted 2/10/2015 8:43 PM (GMT -7)   
hey Luckyman, well I don't know if my joint pain is from Hep B or RA, I know that in the last 6 months I have alot of flare ups in swelling in hands (joints) and elbows. I did not think that the Humira that I was on for my RA helped but it did. I also exercise and rest too, but went it's real cold outside or a front coming in I don't do anything, think I'm getting lazy. Hope you cont to do great Vickie

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 4/2/2015 8:13 AM (GMT -7)   
Sorry I have not posted much. I've been pretty busy with life, but wanted to share the latest with my last appointment on March 9th as we as questions and answers I had from doctor's visit:

HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
Total Bili: 0.5mg/dL
Dir Bili : 0.1mg/dL
Ind Bili : 0.4 1mg/dL (the lab changed the way this reports now.. within normal)
ALT (SGPT) - 49 (down 5 points)
AST (SGOT) - 31 (went down 2 points. StillNormal)
Creatine - 1.15 mg/dL (went back to normal)
Uric Acid - 6.9 mg/dL (went up, still normal)
Calcium - 9.8 mg/dL (went down but within normal)
Phosphorus - 3.8 mg/dL (also went down, still within normal)
pH - 5.5 (up .5 and still within normal)
CK - 134 U/L (up 11 points but still normal)
Parathyroid Hormone - 51.3 pg/mL (Once again, went up... as I mentioned, this keeps fluctuating.)

My 2 biggest concerns:

1.) Cholesterol keeps rising... I need to exercise more, this is for sure. It wasn't listed as high just yet but it's borderline.

2.) My Protein was listed as "+1" and high. Not sure why, I had mainly fruits and veggies all week.

Now onto the important doctor's questions and answers I got:

1.) Asked why the HBV LOG 10 went up .02 from one month to another. He said it was not significant and was probably just the sensitivity of the lab at the time and I should not be concerned. He'd be more concerned if it went up a full point or more.

2.) Asked him the actual meaning of my HBV DNA, whether it meant that less than 29 is detected and I could be undetected or if it meant I was still detectable but it was less than 29.

He gave me an answer pretty much identical to what I expected. He admitted that the lab the clinical trial was using was not the best and there were better labs that report as low as 10 or even 5. He said I could be any number between 1 and 29 on the lab.

I then mentioned to him that I think it's taking longer than I expected to clear and he kind of gave me a "This is where I was expecting you to be, I did say a year and it's almost a year. So as far a I'm concerned, you're on target for what we expected but all of this is just a reminder to me and you that this virus is still in you and even when undetectable, it will still live in your liver. So until that changes/you seroconvert, you need to stay on the medication or else this could come right back!"

I did say "I'm being optimistic that I'm going to clear the virus this year!" and he kind of smiled at me and told me "you could, anything is possible! the power of positivity is important!"

3.) Asked him why my AST and ALT keep fluctuating so much. He looked at me and said it's most likely from a fatty liver, as I am 30-40lbs over weight. He said that at some point, my body may have just leveled off at these numbers and so it's floating right around there. He wasn't concerned with anything serious

4.) Lastly, the new study doctor I was given, decided to take it upon herself to order me an Ultrasound. She said it should have been done every 6 months, etc. I asked about the Fibroscan and she said if it ever came down to it, she'll send me for it but right now sees no need. She did say that she had a patient who was picked up as having cirrhosis of the liver on a Fibroscan and because he displayed no symptoms of having such, they sent him for a biopsy which came back normal... odd, right?
I also had an appoint on March 30th, and had the following:
 
Saw the doctor today (appt window was scheduled for April but meds ran out so I had it today instead). He told me that it looks like the FDA will be approving this new formula very soon. He didn't give me a timeframe but said possibly within the year.

I had a LOT of blood drawn, since it's 1 year mark. I'll know results in a few weeks. I also had a DEXA scan done 2 weeks ago, still no results. They send to another lab for analysis. Should know within a week.

I did get results of Ultrasound back... on it, it said "unremarkable liver. No abnormalities. 13.7cm in size". That's good news indeed! They did find a cyst on each kidney and a 6mm cyst on gallbladder. I was told nothing to be concerned about, as they are fairly common, but to just watch it in a year.
 
After all this, I now go in every 2 months instead of every month. Clinical trial ends 2017.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 4/2/2015 10:06 AM (GMT -7)   
You know how important this journal is for those with Hep B that show up on our forum. We just don't have a large group of Hep B posting...but, your thread has been viewed over 3,770 times!! This means a lot of people are watching your treatment journey, as you know. I can not thank you enough for your what you are doing for others.

I like your Ultrasound result. Unremarkable is a good thing :) I keep hoping for undetectable when I see a new post. I know I am optimistic...but you deserve that. Keep updating, as you are able. We care. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 4/2/2015 10:59 AM (GMT -7)   
Miz, I am always glad to share and willing to answer any and all questions. I love helping people as much as I can who are going through the same thing that I am going through. I have been more active on another board since it was stricly for B, so this one sort of fell through the cracks but I'll be sure to update as much as I can!

I suspect my next labs will be available to me by next week sometime. I am very happy with the ultrasound results for my liver. It actually IMPROVED from my last one in January of 2014!! I too keep praying for undetectable and even seroconversion! That would be a blessing!
Started TDF vs. TAF Clinical Trial on 04/11/2014 for Hepatitis B
Screening Viral Load: 22,300,000 IU/mL
Baseline Viral Load: 18,400,000 IU/mL
Viral Load 28 Weeks into Treatment: 54 IU/mL

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1114
   Posted 4/2/2015 11:15 AM (GMT -7)   
hi lucky, good to hear from you.

your hbv dna has 2 results.
1. viral count
2. detection

<29 is the sensitivity of the machine being used

your statement "I am still detected but was less than 29" is correct.
barry

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 4/13/2015 1:43 PM (GMT -7)   
So wanted to provide another update... before I start, I had this lab drawn on 03/30/2015. During that weekened, I had decided to try Dr. Oz's weekend cleanse program.

http://www.doctoroz.com/article/48-hour-weekend-cleanse

The food was delicious but it was rough and probably not the best weekend to do this right before a lab. On top of this, I had a championship ice hockey game the night before... it was one I could NOT miss.

So here are results... this was considered the "1 year mark" even though it was a month ahead of time:

HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
Total Bili: 0.6mg/dL
Dir Bili : 0.1 mg/dL
Ind Bili : 0.5 mg/dL ALT (SGPT) - 49 (down 5 points)
AST (SGOT) - 38 (Up 7 points, says it's 2 pts higher than normal)
ALT (SGPT) - 64 (Highest it has been for a while
Creatine - 1.16 mg/dL
Uric Acid - 6.9 mg/dL
Calcium - 10.2 mg/dL
Phosphorus - 3.7 mg/dL
pH - 6.9 (up .5 and still within normal)
CK - 138 U/L (up 4 points but still normal)
Parathyroid Hormone - 23.1 pg/mL (Might be lowest I have seen this on this particular lab. It went down a lot.)

Now for the "more numbers I don't get often" portion:

P1NP - 113.90 ng/mL (It was high)
Protein - Labeled as "Trace"
Ostase - 22.92 ug/L (Normal)
Osteocal 46.78 ng/mL (High but 8 points from normal)
HBsAg - Positive
HBe AB - Positive
HBe Ag - Negative
Fibr.Score - 0.36
Fibr.Stage - F1-F2 Moderate Fibrosis (I was F0 before treament)

All this being said, I think it's time to make some lifestyle changes very quickly! It's the only thing that could help. Feel free to comment!

rachel_chu
New Member


Date Joined Nov 2014
Total Posts : 4
   Posted 5/19/2015 12:04 AM (GMT -7)   
Hi luckyman,

So great to see you're improving.

I have not been visiting this forum for months, as I had a flare up early this year.

Luckily, at my 5-month follow up:
HBV DNA dropped from 1 billion to 214
ALT now 24 (which shoot up to 495 early this year)

Will have my DEXA next month.

Keep updates!

Cheers,
Rachel

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 5/19/2015 3:20 PM (GMT -7)   
Hi Rachel, Sorry about the flair, but glad to see your HBV DNA dropped so dramatically! ALT back in normal range. Wonderful news. Love to hear all updates from you. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4803
   Posted 5/19/2015 3:47 PM (GMT -7)   
rachel...liver disease can be so up and down. glad to hear things are quiet again...Hoping for a long long smooth sailing.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

rachel_chu
New Member


Date Joined Nov 2014
Total Posts : 4
   Posted 5/19/2015 9:46 PM (GMT -7)   
Thank you both of you!
Yes, I am very happy the medicine (whatever TDF or TAF) works well on me.
And the flare did help a bit in fighting the virus too.

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 6/8/2015 11:00 AM (GMT -7)   
Sorry I have not been as active, updating more. They are now watching me every 2 months. I got results from my latest DXEA Scan about a month after it happened. Here it is:

Region: Spine L1, BMD: 0.889, BMC: 11.1, Area: 12.51, TScore: -2.3, ZScore: -2.3

Region: Spine L1-L2, BMD: .973, BMC: 25.5, Area: 26.23, TScore: -1.9, ZScore: -1.9

Region: Spine L1-L3, BMD: 1.021, BMC: 41.0, Area: 40.19, TScore: -1.6, ZScore: -1.6

Region: Spine L1-L4, BMD: 1.035, BMC: 57.6, Area: 55.68, TScore: -1.5, ZScore: -1.5

Region: Spine L2, BMD: 1.049, BMC: 14.4, Area: 13.72, TScore: -1.6, ZScore: -1.6

Region: Spine L2-3, BMD: 1.080, BMC: 29.9, Area: 27.68, TScore: -1.3, ZScore: -1.3

Region: Spine L2-4, BMD: 1.077, BMC: 46.5, Area: 43.17, TScore: -1.4, ZScore: -1.4

Region: Spine L3, BMD: 1.110, BMC: 15.5, Area: 13.95, TScore: -1.1, ZScore: -1.1

Region: Spine L3-L4, BMD: 1.090, BMC: 32.1, Area: 29.45, TScore: -1.3, ZScore: -1.3

Region: Spine L4, BMD: 1.071, BMC: 16.6, Area: 15.49, TScore: -1.4, ZScore: -1.4

Spine Total Adequate BMD: 1.035, BMC: 57.6, Area: 55.68, TScore: -1.5, ZScore: -1.5

Region: L.FemurNeck, BMD: 0.929, BMC: 4.7, Area: 5.02, TScore: -1.1, ZScore: -0.8

Region: L.FemurShaft, BMD: 1.145, BMC: 17.6, Area: 15.38, TScore

Region: L.FemurTotal BMD: 0.959, BMC: 31.7, Area: 33.01, TScore: -1.0, ZScore: -0.8

Region: L.FemurTotalAdequate BMD: 0.959, BMC: 31.7 Area: 33.01

Region: L.FemurTrochanter BMD: 0.744, BMC: 9.4, Area: 12.60 TScore: -1.7, ZScore: -1.6

Region: L.FemurWards BMD: 0.749, BMC: 2.1, Area: 2.80 TScore: -1.6, ZScore: -1.3

If I compare this to my last result, it's clearly obvious there is slow bone density loss going on here. This further makes me believe that I am on the old drug on this trial. Feel free to comment. I'll have more lab results in 2 days. Still debating on doing accupuncture to help with the tinnitus, since I've read there is a relation to this and the liver.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 6/10/2015 5:27 AM (GMT -7)   
Great to see you updating, and know your Hep B journey is helping others that follow you, luckyman. I know nothing about Hep B, but do want you to know I follow your posts. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 6/12/2015 9:26 AM (GMT -7)   
Thanks, miz!

On that note

Just wanted to share latest results:

HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
Total Bili: 0.3mg/dL
Dir Bili : < 0.1 mg/dL
Ind Bili : <0.3 mg/dL
AST (SGOT) - 35 (down a few points)
ALT (SGPT) - 53 (down from before, thankfully)
Creatine - 1.26 mg/dL (.02 higher than top end)
Uric Acid - 7.5 mg/dL
Calcium - 9.8 mg/dL
Phosphorus - 3.3 mg/dL
pH - 5.5
CK - 213 U/L (this number jumped up a LOT)
Parathyroid Hormone - 60.4 pg/mL (Again, up a LOT)

I'm concerned about all these and then this comes up with urine test:


CRYSTALS: Ca OX Present
MICELLANEOUS ELEMENTS: MUCOUS

How does one even get mucous in their urine? I am not sexually active so this is a shock to me

But then I see other lab:

CS&GCtrlClr KX 34.2 which is low
Apparently lots of other required testing was "unavailable"

Then I saw this and it alarmed me that this lab could just be wrong:
CYSTATIN C - MISHANDLED BY LAB


I wonder what all happened here? Very odd!!

Anyway, I've generally been feeling pretty decent and such, and am not concerned any more at this point about overanalyzing it all. We'll see what happens in 2 months.
Started TDF vs. TAF Clinical Trial on 04/11/2014 for Hepatitis B
Screening Viral Load: 22,300,000 IU/mL
Baseline Viral Load: 18,400,000 IU/mL
Viral Load 28 Weeks into Treatment: 54 IU/mL

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 8/6/2015 1:03 PM (GMT -7)   
Hey all, been a while since I've posted. Nothing much to report so wanted to share the latest:

Just got my latest results back:

HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
HBsAg
Total Bili: 0.5mg/dL
Dir Bili : 0.1 mg/dL
Ind Bili : 0.4 mg/dL
AST (SGOT) - 34 (down one point)
ALT (SGPT) - 54 (up one point)
Creatine - 1.20 mg/dL (Back to normal)
Uric Acid - 7.1 mg/dL
Calcium - 9.3 mg/dL
Phosphorus - 3.7 mg/dL
pH - 5.0
CK - 274 U/L (this number jumped up a LOT again)
Parathyroid Hormone - 67.3 pg/mL (Can't get this back down)

Anyway, they refilled stuff and sent me on my way. I suspect they are flip flopping between TAF and TDF in these bottles. Some months, that I have taken it, I develop some major "TMJ" issues and things are really messed up. Others, the issue goes away. I did a lot of reading that Tenofovir/Viread has been known to cause this issue and in some cases, patients needed surgery.

Anyway, next appt is a big one again with more numbers, more blood drawn, DEXA scan, etc. I plan to take in a better diet and do more exercise between now and then. I'm going to buy a book called "the liver healing diet" which details step by step some good recipes and such to help me along the way. Who knows, it's worth a shot! :)

luckyman316
Regular Member


Date Joined Nov 2013
Total Posts : 207
   Posted 2/6/2016 11:35 PM (GMT -7)   
Sorry for not updating you all here. I've actually focused my updates on another forum, since this one mainly focused on Hep C and reading some of the more severe liver issues was VERY depressing on here. Anyway, I wanted to put it out there with results from my last labs (since I do know people do ask questions or read stuff here):

Wanted to share the latest labs with comments:

HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected
Total Bili: 0.3mg/dL
Dir Bili : < 0.1 mg/dL
Ind Bili :< 0.3 mg/dL
AST (SGOT) - 29 (down 4 points)
ALT (SGPT) - 38 (down 13 points and now NORMAL)
Creatine - 1.15 mg/dL
Uric Acid - 7.5 mg/dL
Calcium - 9.8 mg/dL
Phosphorus - 4.9 mg/dL
pH - 5.5
CK - 247 U/L (huge jump.. wonder why?)
Parathyroid Hormone - 32 pg/mL (Back down again! 17pts less)
HBsAg: None done this lab, next lab it will be

Generally happy about the huge decrease in ALT. It's been always fluctuating at just above high cut off and now it's normal. Whatever I'm doing, seems to be working. Mainly dietary changes tbh. Concerned about CK levels but this is not first time it's high so let's see what next test reveals. They want me to go for DEXA, Ultrasound and MRI before next one. I swear, I was there less than 6 months ago. I suspect they are speeding up the trial for some reason. In February, I officially start TAF only.

That being said, I am worried about switching to TAF only. My main concern is that I don't know what I am on now and if it happens to be TDF, it's been working fine. TAF, while it's supposed to work better, is less potent. I worry that a lot of the same symptoms I had prior to treat start to come back on me because of less potent medication. I can admit this, there has been a time or two in the past few months that I miss a dose by accident and for the most part, I feel fine but there was once where I felt lightheaded/dizzy the next day after I missed it. One thing I did notice was that the ringing in the ears would be LESS a day after missing a dose. So this is a good sign (I think) that my body may actually be fighting it along with the meds.


I also upped my Vitamin D levels to 20,000iu daily (though there is a day here and there I might skip due to the sheer fact that I forget to take it). I can assure you, doing this has made me feel a LOT better as well. Right now I am only doing Vitamin D3, Zinc & Magnesium. I have NOT thrown in anything else. I feel a LOT better, lost 10-15lbs since December do to a better diet and a little more exercise as well. My sleep patterns are pretty normal.

A few of the main things, which I think contributed to the better liver results:

-Daily room temperature water with lemon in it
-Green or Ginger tea at night with Honey
-Black Seed w/ honey

However, I stopped doing this because life took over a bit with other stuff for me. My trial is right on target and after all said and done, I should be done with the trial at the end of the year. They just submitted TAF to the FDA for approval a few weeks ago, so I'm hoping by the time it's done, I get to continue on it next year. Of course, my main concern with this will be the cost per month (even with insurance). I'm currently in a bad financial crisis and adding any more expenses to it will be a legit disaster for me.

I'll keep everyone posted as much as I can. Thanks!

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1114
   Posted 2/9/2016 10:26 AM (GMT -7)   
 hey Lucky, 
your numbers seem to be quite consistant. you have remained below the limits of quantification, but are still detected.
 
Hopefully your trial sponsor will continue to take care of those who committed to this trial. dont be a stranger
barry
 

woofer4
Regular Member


Date Joined Jan 2016
Total Posts : 35
   Posted 2/9/2016 5:22 PM (GMT -7)   
Hi lucky, congrats on remaining below LOQ and best of luck with the remainder of the trial and beyond. Sorry about your financial worries and the prospective cost, but there are pretty good patient assist and support programs these days.

I myself have been a very lucky man with respect both hep b and hep c (sig below).
BTW, I wouldn't be too concerned about a fluctuation in your total CK, particularly since it is not consistently elevated. Could even be a result of your workouts, i.e., increased physical activity.

Anyway, glad to hear you're doing well and maintaining that positive attitude. Sometimes attitude means just about "everything"!

aka woofer5

______________________________________________

2013 / Diagnosed and successfully treated for hep c geno 1b with Telaprevir, Interferon and Ribavirin...treatment duration 24 weeks.
Retired CRNA (aka nurse anesthetist)...approx 35 years experience in the ER and anesthesia.
Exposure was likely a bloody needle stick from a known hep b patient in 1977. Hep B never progressed to the chronic phase...my own, healthy immune system crushed it.

avid runner
New Member


Date Joined Feb 2016
Total Posts : 2
   Posted 2/29/2016 1:21 PM (GMT -7)   
Hi, just found this forum and this is my first post.

I have a question. The doctor got me started on the medicine "Viread" about 8 months ago for my chronic Hepatitis B. Is Viread the Tenofovir (or TAF) that Luckyman has been receiving?

Thanks in advance, Robert

avid runner
New Member


Date Joined Feb 2016
Total Posts : 2
   Posted 3/2/2016 4:42 PM (GMT -7)   
Ha, never mind. Google "TAF Hep B" led to a Gilead announcement in Jan. It just ended its phase III trial. I'm wondering when it will be available.
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