If you are on the Space Coast, your closest Transplant Centers are:
Mayo Jacksonville www.mayoclinic.org/departments-centers/transplant-center/liver-transplant
Florida Hospital Orlando /www.floridahospital.com/orlando/liver-transplant
Jackson Transplant Miami www.jacksonhealth.org/transplant-liver-adult.asp
This is where the big shots are, the best hepatologists want to be where the "action" is...research, surgery, front line with newest treatments, etc..
I am not saying that you are interested, eligible, or need a transplant, only saying where the best docs are.
Before Mike got to the TP stage, he had a consultation with a TP Hep to go over his situation, to find when it would be "time" to come to the hospital and stop going to community GI services. They reviewed his labs, recommended some additonal labs, reviewed his biopsy slides, etc and gave us a pretty good list of IFs...so when the platelets tanked, and HE got bad, and urine got brown, etc. et . It was TIME to take on the commute to Jacksonville, Orlando, or Miami.
We are on the Treasure Coast, just south of you, and chose Miami...125 miles for us. They were fine with his Medicaid, though he did have to switch HMOs to one they took. For the year of the transplant, he got extra services.
Now post TP, he goes down a few times a year unless there is something else going on....like now. He has a hernia that needs to be repaired and they like to do deal with their own patients.
Before we moved to Florida, we lived in CT. There our choices were in Boston or New York. We saw a Hep in NY at Mt Sinai once a year to review the status while he was being treated at UConn in their GI department.
I need to say that our local GI doc here on teh Treasure Coast would never have said it was "time," even though he was very sick. He would have died had a hematologist not made the final referral. See...Mike was still drinking alcohol and the GI doc figured he'd not qualify for TP so why bother...he was a goner...self induced (I have very negative feelings about
that doc). The Hematologist knew he was dying and send him forward with the admonition that he'd need 6 months of sobriety and she hoped Mike would be successful with that because without it, he would die. Thank goodness she helped him. The docs in Miami were fantastic to work with.
We have several folks here on the Harvoni.
Go to the blue line above and find SEARCH. Choose Harvoni as your key word and the other threads on it should pop up. Post on t hose threads and see if you can get something going...I think there are 3 others.
Good luck...I am certain the Harvoni will work.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
Post Edited (MamaLama) : 1/24/2015 12:24:22 PM (GMT-7)