Hi again, GWTWfan! And Ziff, thank you for your kind words. To be honest, at first I wasn't sure if I'd be able to continue posting here - the pain of Robert's death was so deep and all-consuming. I really didn't know if I wanted, or could handle, reading about
successful transplants and treatments. But then I realized that maybe it would help me to hear about
other people kicking liver disease's arse. And it does. Yes, I wish Robert had beaten this evil, nasty disease - he came so close and been through so much - he DESERVED to beat it. But so many others deserve it too - and I need to do what I can to support them. And it's not just for me, I feel I owe it to Robert too - if that makes any sense. Ok, enough of that!
Alright GWTW, I found my notes (it was actually in an email). We were told that there might have been a little bit of fluid back there and/or it could have been from the fact that his new liver was larger than his own was. There also could have been some air getting trapped and movement was 'stirring things up'. Shortly after he mentioned the gurgling, he had a CT and and U/S - nothing was found. And this all began way before he got sick again - it had nothing to do with his recurrent illness. Well, hope that helps!
I don't want you to feel scared because of what happened to Robert - please don't. I'll briefly explain what happened with him - maybe it will help ease your mind. Robert had cirrhosis, HCC, and HepC. He received his new liver on 11/04/2012. He had several good months (2 very good months), but then the HepC returned fairly quickly and became VERY aggressive (not all strains do this). In September 2013, his doctors gave him 6 months. He was denied the opportunity of a 2nd transplant and subsequent treatment with the new meds (something I will never forgive TGH for, nor forget - but that's a whole other story). On Jan.31 he fell into a coma, in total renal failure. He was in a coma for 11 days and died on Feb.11. He was a wonderful, loving man - for 15 years we were lovers and best friends - I will miss him forever.
What happened to Robert was not the 'norm' and he could have been saved. Most transplant recipients do very well - I bet you'll be one of them!