I know how you feel but all we can do is have faith that it will get better. Get him the best care possible and keep up with his results and do everything you need. There are some days I have so much faith and feel that he looks so good, and other days I get a huge bout of depression. I've come to realize it's perfectly normal to feel that way.
Truth is I stopped researching because I already know the truth and the prognosis, so there is no website that will give me what I want to hear. The reality won't change, only our approach to make it better. We both know what the one hope is, and all we can do is put them in the best scenario to try and get that.
Hey who knows maybe a few years from now post TP for our dads we can all go have dinner somewhere.