Hey Ron! Congratulations again on your successful transplant and on such a fantastic beginning of your recovery! It always makes me happy to see these wonderful endings/beginnings.
I have to ask you something about
your HepC treatment. First let me say that I am in no way doubting or questioning your doctor's decision on your treatment - quite the opposite in fact! What exactly did they tell you about
starting treatment immediately after transplant? Robert's team at TGH told us that there was no way they could start him on any treatment for at least a few months. The reasons they gave were: 1. The treatment meds could mess with his LFTs, and it would be too difficult to differentiate between issues from the HepC meds, the transplant meds (especially prednisone), and the transplant itself. 2. The HepC meds could interfere with his recovery from the surgery, i.e. side effects. 3. There was too little research done on the safety and effectiveness of treatment immediately after transplant.
Obviously TGH was wrong - again. It sounds like you have a great transplant team behind you! If you could tell me what your doctor said about
your HepC treatment, I would SO appreciate it. Between this and other things I have learned over the past few months, I am now 100% sure that TGH allowed Robert to die, when he most definitely could have been saved.
Again...I am very happy that you are doing so well - it helps my heart a bit every time I hear of someone getting the upper hand on this awful disease. Your story is inspiring!
Post Edited (Splashdancer) : 5/17/2014 2:06:42 AM (GMT-6)