Allen's Sovaldi + Ribavirin Treatment Log Volume II

painter5971 new to blog not sure im doing this right, any reply?

Hi Painter,

Welcome to the Hep forum. Let's have you start a new post so others will find you. Above on the left you will see a button, "Post New Topic". If you click on that, you will be able to start a new post. Please feel free to tell us about your liver disease and ask any questions you have. We are glad to have you here.
Big Hugs,

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themiz, Forum Moderator-Hepatitis

Wife of themister, a fine man living with ESLD.
Eradicated Hep C geno 3a SVR July 2012-- TIPS, HE, January 2013
Transplant list, Mayo AZ- July 11, 2013 MELD 14

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.”
Kahlil Gibran

Hello everyone, I'm back and I have great news!! I just got the phone call from my blood that was drawn last week(three months post treatment)

I was told the Hepatitis C that was once in my body is UNDETECTED, it was an emotional phone call is all I can say.

I avoided the forum the last three months because honestly after the three months treatment and being told "It's still detected and less than 12" I was somewhat worried it didn't work and wanted to try not to dwell on it daily and just enjoy the summer and I did.I went on a cool vacation through California and visited my boss and went and seen the Sequoia national park and just enjoyed myself and tried not worry too much.

Solvaldi worked, it cured me and I'm very happy and thanks again everybody for all your help and support this past year, love you all!

Big congrats!!! Seems like we're batting 1000 so far :)

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Sovaldi + Ribavirin Treatment began February 4th 2014 - 12 weeks of treatment. Tx naive. Genotype 2b. Viral load January 8th (4.15 million) Day 14 (105) Day 28 (<15 Detected) Day 56 (<15 Not Detected) Day 85 (<15 Not Detected) SVR12 achieved on July 29th

OMG! You were detectable at EOT and got SVR12! That's a wonderful Cinderella story! A hearty congrats to you, my friend. YOU are such an inspiration to ALL!

Live well and prosper.

Hold Fast

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G2--Finished treatment with Sovaldi and Ribavirin 7-20-2014. Presently, UND and hoping it sticks!
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I had nothing to offer anybody except my own confusion. Jack Kerouac

Allen...Themister and I are watching football and checking in with the Hep Forum. We just read this great news post....YAY!!! We both want congratulate you. Of course, he has me type this : ) This is so very hopeful for anyone treating now. Well done, my man!! Big Hugs,

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themiz, Forum Moderator-Hepatitis

Wife of themister, a fine man living with ESLD.
Eradicated Hep C geno 3a SVR July 2012-- TIPS, HE, January 2013
Transplant list, Mayo AZ- July 11, 2013 MELD 14

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.”
Kahlil Gibran

Thanks everyone, its amazing and I'm so glad it worked like they claimed, i was very worried after treatment when they claimed it was still detected, I thought it was a false reading and then I had thoughts I might have to do the treatment again which would have been fine but it was the darn stress of it all...just glad its now UNDETECTED and I can move on with life.

I woke up this morning with a HUGE smile on my face! It's gonna be a great weekend, actually the rest of my life will be great and no more stressing about Hepatitis C.

I hope all governments and insurance companies realize we need to drive down the price of these drugs so that EVERYBODY gets this cure asap, we will face many more worse viruses and diseases in our lifetimes and its time to torch Hepatitis out of existence like we did with Polio...regardless of income or insurance this treatment needs to be as cheap as the flu shot and needs to be covered by every insurance provided world wide.

Not offering the cure for cheap is a serious drain on the health care system, we have alot of hospital beds and doctors time being wasted because of Hepatitis C that can now be cured rather easily in 90 days for most, the *only* thing holding back the world from being treated is the unreal cost of Sovaldi and price of it is beyond the GREED level.

I'm thankful to Gilead for bringing Sovaldi to the market but I will NEVER agree with the current pricing and the GREED, they can claim they need to recover money invested to develop it but lets be honest theirs a fine line between huge profits and sickening GREED and in this case the price is so obvious its nothing but greed knowing they are the only solution until the other drugs are released sometime this year.

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Sovaldi + Ribavirin Treatment began February 6th 2014 - 12 weeks of treatment. After 4 weeks treatment VL has dropped from 4.7 Million to *79* - I've finished treatment April 30th 2014 .

VL level as of May 1 2014 is "<12 DETECTED" - Next VL test July 31 2014 and my results may change to undetected.

Allen...this is fantastic news...praying for the same at out house.

I am a mushy one...I cry each time one of our folks gets their transplant...AND when each of you reaches SVR.

Tears of joy, of course.

Today they are for you.

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MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4.

neil,
Sorry to hear you had problems and stopped treatment. Many people have anemia and other side's from treatment.

I do not see the SVR results are adding up from your post, neil.


It appears you stopped early and were tested too early after you stopped treating to determine your results, other than undetectable when that last VL was done. Of course it is possible to obtain SVR when stopping early, and there is talk of new, shorter treatments in time with some treatments... but in order to determine if you actually did get SVR, you must wait 12 weeks after end of treatment for a VL. Hang in there...get one more VL and know for certain!! I wish you the very best, Big Hugs

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themiz, Forum Moderator-Hepatitis

Wife of themister, a fine man living with ESLD.
Eradicated Hep C geno 3a SVR July 2012-- TIPS, HE, January 2013
Transplant list, Mayo AZ- July 11, 2013 MELD 14

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.”
Kahlil Gibran

Thanks for Reply Themiz.
I neglected to write that I feel great since Sovaldi TX ended!! Better than I have felt in over 10 years! I'm eating more & gaining weight again (Lost 15 lbs last 2 years). Before Sovaldi TX I had become sedentary and I was a former athlete who regularly exercised & maintained my body.

I had 6 weeks undetectable HCV by August 12 and by the way I'm feeling it's a slam dunk that I'm part of the 97% cure rate.

A big thanks to all who have shared their stories here, They gave me cause to be optimistic. They also made me feel better about my own numbers.

Pre-Treatment viral load 1 million
GT #2
Age 56
Pre-Treatment Ultrasound showed no liver damage.
I was Treatment Naive'
Positive for HCV since 1999 (test several times previous years).
Weight 140 lbs.
Vegetarian

Allen, wondering if you had some of the post treatment side effects others have talked about.
I am supposed to begin today.