Posted 11/26/2014 7:33 AM (GMT -6)
Oh, Dorothy, so sorry Bill is in pain. Themister has no pain. That would be so difficult. A bit about themister's journey.
Healthy, hard working man for 40 years. No health problems. DX with Hep C in routine physical 2005, and began the liver journey. He appeared healthy with small hiccups, until 2010.
Themister had many vericies banded. EGD's every 6 months for 5 years.
Hep C treatment #1 2005-06 ....FAIL.
Gastric bleed in 2010.
Infection in the fluid. An emergency surgery for an infection in 2011. 50/50 shot of survival. He survived :)
Hep C treatment #2. .....SVR. Success!
Dx with vericies in cardia Nov. 2012. Confirmed Dec 2012. ESLD, MELD 10, 11, 12...Nov-Jan 2013.
TIPS=Jan 2013. HE began in ICU. MELD 14
Mayo transplant list, July 2013. MELD 16
Broke his shoulder, end July, 2013. Pain meds spiked hallucinations. Ditched the pain meds after realizing they were the problem. But HE was never gone entirely since TIPS.
Hepatic seizure Jan 2013. His HE was bad, but the addition of Zoloft by TP team turned out to be bad juju for themister. Quit Zoloft. MELD 14
The TIPS did bring on the HE, but he no longer requires EGD's, does not have bleeds, he does have small ascites on scan, but no taps. Has edema and entire body swelling, even on less than 1,000 mg of sodium per day. His kidney numbers are good still. So MELD is low.
Off and on jaundice
Lactulose 30 ml. 4 x per day....more as needed
Xifaxan 550 mg. 2 per day
Themister has a benign cyst that came during interferon-riba treatment 2011... in his neck. It was drained, filled back up. He also has 2 cysts on the liver, and some on the pancreas Mayo is watching.
MELD has been mid-teens for 2 years.
Yes, many linger like this for years, and he is now one of them. Hard to be patient.
Themister is 64. How old is Bill and what meds does he take?
Big Hugs Dorothy, you need all you can get.