One thing you should keep in mind about
the deceased donor program is that the MELD score at transplant varies from region to region. The northeast region has very high MELD score requirements. This truth may be part of the reason you are considering a living donor program.
Another of our members has struggled through this decision and you can read through her posts.
On the SEARCH button on the blue bar put in Schimbare and you should find both her email address and her last posts. Continue back, she has struggled with this decision.
She has also considered moving temporarily to a region with lower MELD scores at transplants. She has looked at Oschner in Texas and Mayo in Jacksonville Florida...both who transplant in the low 20s.
We have other members with PSC..use that same techique to find them and post on their threads so you can get some dialog going. If you are interested in having like minded folks find you, you can change your profile to make your email address visible as mine is. I ask that folks who contact me personally, put Healing Well in the subject line so that I don't delete it as spam.
Welcome to our forum...we are a group of patients and caregivers supporting each other through good and bad times. As my information shows below, I am not the patient....my partner Mike has been through it all. And is not doing that well this week...but from a minor complication...incisional hernia repair over the big TP scar.
Best to you...and get ready, this isn't a marathon, it is a long forced march through deserts, mountains, and swamps!
I hope you have a partner/spouse/loved one/parent/child, etc who will help along the way.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
Post Edited (MamaLama) : 3/31/2015 2:19:29 PM (GMT-6)