Hi, I am new to all of this. In June of this year I passed out and ended up going to the hospital. Apparently, it was a saving grace, because otherwise I would have never found out my liver enzymes were high, three times the level I was told. My dr. decided I had passed out from hypoglycemia (I didn't eat much that morning and got hot), so that wasn't related, but he felt that I had AIH and sent me to a specialist. The specialist now thinks I either have fatty or AIH, but my ultrasound was clear and there was no fat (steaosis?) found in my biopsy. My biopsy said Grade 2/4 Stage 2/4 Chronic Hepatitis. I'm not a big drinker (now I'm a no drinker) and have never really been too sick in my life. Most recently, the specialist had rerun all my tests and discovered a CMV reading of 2.54. My liver function tests were 56 and 127 (I am guessing AST and ALT respectively). I told him about some pain and discomfort I had recently and my regular doc prescribed me aciphex. The specialist prescribed my Urso, 500mg, twice daily. I had to come home and research what CMV was and what Urso was for. It scares me. Honestly, this whole situation does. I've been seeing the specialist for about 3 months now, once a month. I am concerned that I am not getting good care from him. He talked of sending me to Shands (teaching hospital) for possible experimental medicines, I think he said if Urso doesn't bring this down. I have expressed my concern about prednisone, but he doesn't seem as if he wants to put me on that anyway. I am just concerned all around. I don't know what is in store for me. I have read many of these forums and they seem to be the best way to find things out. I have had an ultrasound and it was fine (so no indications of fatty liver there either). I am also being sent for a Gastroscopy in November. My biopsy was done in the beginning of August, he had sent it out for a second opinion, but I don't know that he's got the results back yet.
Sorry this post has been so long. I do appreciate any input or advice that anyone can share or add to this new experience for me.