Welcome to the HW Hepatitis Forum. We are a group of patients and loved ones of those affected by all kinds of liver disease.
I am the caregiver type...and you can see below that my Mike has been through it all.
We have many members from Canada, some of whom have been through the treatment routine and fought with their "systems". Most eventually get it worked out.
Mike is about
your age and has done both the transplant and treatment in FL and had any number of disagreements with his insurance. During the bad parts he was on Medicaid, our State insurance, and they were a pain sometimes....with all their special rules.
I am just guessing, but some in the UK and others with similiar state run insurance triage their treatment approvals..sickest first until they have reached the budgeted $$$ for the year and then make the rest wait.
I will check with my co-moderator themiz who is better than I am about
keeping track of former posters and see if has the url for the good post on appealing and "encouraging" insurers to approval folks for their procedures and treatments.
The good news is that you are not in an END STAGE situation. Mike was at END STAGE liver disease when he got his transplant and carried the Hep C forward into the NEW LIVER...a bad situation but now he has been treated and we hope he gains some extra years with that new, but damaged liver.
Can you or your doctor reach out to the state? Can you? Is there a number?
I found this information on another site about
Harvoni HELP in Canada:For more information regarding the Momentum Program in Canada, please call 1-855-447-7977. - See more at: www.gilead.com/news/press-releases/2014/10/health-canada-issues-notice-of-compliance-for-gileads-harvoni-ledipasvirsofosbuvir-the-first-oncedaily-single-tablet-regimen-for-the-treatment-of-genotype-1-chronic-hepatitis-c#sthash.jGp6akXX.dpuf
I have read that IF you have state insurance the Canadian help programs don't work. But I am thinking maybe they WILL help you with advice on how to get the govt program moving along.
Most here will say that curing Hep C before it gets really bad is imperative and a HUGE cost savings. Those in late stage have many problems that can be avoided...waiting until folks are desperatly ill seems crazy to me. But I can also see the argument that there isn't limitless funding. A huge dilemma.
Keep in touch and let us know how you worked this out.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
Post Edited (MamaLama) : 9/13/2015 6:49:22 AM (GMT-6)