Traials with Hep C treatment over theyears

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New Member

Date Joined Aug 2005
Total Posts : 1
   Posted 10/24/2005 10:45 AM (GMT -6)   
I was daignosed with hEP c in the late 90's. the FDA hadn't even  approved the treatment yet. I was part of a trial out of UMDNJ in Newark using Interfuron only, When I complained to SDchering about the aches and pains, I was told I was a rare case and the exception rather than the norm. My Dr. - who oversaw the treatment for the liver speacialist prescrbied me percodan for pain. soma for aches and xanax for anxiety. A recoevering addict when I beganb the reatment, I was in full blown addiction in no time. Needles to say the treatment did't work.
Last year I had a bisposy (2004) and my viral lode was 8 million. I was not ready to go on treatment again psycologically so I waited until this year. My viral lode is now 148 million. I am on the Pegasus (one shot a week with 6 pills of Ribavirin a day). The shots a killer, but I am clean and sober and the regiment inkly lasts a year thus tme as oposed ti 12 monthd the last time,'
One thing that coinfused me was the Dr, said I should  take Tylenol for pain. I had heard that was a tabboo for Hep suffererers, but he say that's only  for active drinkers .
The shot as I said is killer and I spend the night shivering to death, Does this level off, and what about the tylenol issue? Thanks. I am stage 2

Post Edited (curio) : 10/24/2005 9:51:25 AM (GMT-6)

New Member

Date Joined Dec 2004
Total Posts : 19
   Posted 11/16/2005 2:13 PM (GMT -6)   
It's really a good thing ( in a strange way ) that Dr. first had you on interferon. Even though it did not work you still have the pegassua to try. I was not so lucky. And up until now with all the trails there was no other meds for hep c. My viral went from 100,000,000 down to 4o but then shot back up to 1,ooo,ooo. And I'm co-infected. So hang in there my friend. As for the tylenol , its for the flu like symptoms. I too was concerned. but if you need to take on occasionally then don't worry. It's when it's in excess that can do more harm than good. And be pro-active with your treatment. Don't just assume Dr. will do all , I made that mistake but will be more prepared for next tx in the future. All the best to you.

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 12/4/2005 2:18 PM (GMT -6)   
Hey there! I was treated early on too, in 1994 with Intron A, and it was still experimental or just approved I think. I know there were insurance issues. I'm sorry you didn't get well. I supposedly did, but now they are telling me it's not altering the course of the disease even though I've been PCR neg for 11 years. Isn't that a trip. God bless you in your recovery. I was told the tylenol thing too and it was the only thing I could take for a while, now I can't take that. I hope you feel better.

New Member

Date Joined Dec 2004
Total Posts : 19
   Posted 12/4/2005 8:35 PM (GMT -6)   
Thank you for your incouragement. With so many new drugs coming down the avenue I think we'll both get another shot at this monster with precision aim

New Member

Date Joined Aug 2005
Total Posts : 2
   Posted 12/9/2005 6:49 PM (GMT -6)   
I was told in 1993 that I had hep c...After a biopsy I was told I had stage 4 liver disease...I went on interferon & Dr. stopped me after 6 months there was no change....When the cocktail of interferon & ribaviran was approved, I went on it....Thought it was going to kill me...Was not able to function the day after I took the injection...Stayed in my recliner covered up from head to toe from chills....Was soooo sick I prayed to DIE....BUTTTTT thank the good Lord it done what it was suppose to...I am now free & clear from Hep C & have been for 5 years.... Am still having problems from the liver disease tho...Good luck to anyone on the interferon cocktail & God Bless....

Regular Member

Date Joined Jan 2006
Total Posts : 142
   Posted 1/15/2006 5:29 AM (GMT -6)   
Gogo, I am so glad it worked for you!! I am hoping the same for my hubby. Yes the shot is a bear!. The description of you in your recliner is the spitting image of hubby. Saturdays are so hard on him. I give him his shot every Friday. It kills me to do it because I know how sick it makes him, but on the other hand I know it can save his life. God Bless You!
Motorcycle wreck 8-27-2004, Fx pelvic bone x4, fx top of femur 3x, dislocated hip, fx bottom femur x5, total knee destruction-rebuilt with 15 screws and 9 plates, sheared plateau off-7/8" by 5" screw used to reattach, fx tibia x44-2 plates, 6 screws and titanium cage, fx fibula x4-plate and 4 screws, 3 bone grafts, one skin graft, one skin fold, ruptured bladder, lacerated liver, bruised lungs, severe nerve damage from mid thigh to toes, drop foot and oh yeah a broken ankle.  Just happy to be alive and still have a leg.

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