First of all, hello everyone. I am new to the forum.
My problems started around late December. It all began as swollen lymph nodes in the neck and night sweats/chills. At that time, the doctor ordered CBC/Metabolic Panel and a neck CT scan. All clear, except slightly high WBC. She said I was fine.
These symptoms continued until about
Feb. when I began to have a high heart rate. Was diagnosed with sinus tachycardia. The doctors at this point thought everything could easily be contributed to anxiety.
Feb/March I began to lose a good deal of weight and began to get fatigued. I then saw a gastroenterologist and had an upper endoscope. All that he saw was a tiny peptic ulcer that was not bleeding. Right before the endoscope I was tested positive for occult blood (I have had dark stools) but he didn't feel the ulcer was bleeding. Shortly before this, I had pain in my liver area (a stabbing pain in the URQ) and went to the emergency room. They said it was most likely gastritis and that was what prompted my gastero visit initially.
So I went to a Rheumatologist and that was all normal as well. Then, I began having slight kidney pains and foamy urine/nocturia. Went to (2) nephrologists and a urologists. All said my kidneys were fine and cystoscope showed nothing wrong with my bladder.
So I've deteriorated since all this started and am still at square one. All of my labs come back relatively normal. Here are my current symptoms:
Slow growing hair/Dry hair
Tremors of hand
Mental changes (I think it could be encephalopathy but have no proof)
Muscle wasting (my forearms are so skinny and my calves. Muscles feel mushy)
Can't quit moving my toes when I am sitting
Right shoulder numbess/slight pain
Stabbing pain in abdomen sometimes
My stool seems dark, but I've had 2 doctors do occult test again and they are always normal, and I buy the colon screening kits and they are always normal as well
Pretty bad fatigue
Wheeziness when I sleep
Hairy tongue in the back
I was having sleeping problems, not so bad right now
Dark urine, especially in the morning
Hazy urine during the day and foamy
I think that's about
it. Here are labs I've done:
Metabolic panel - Always normal, sometimes slightly high blood sugar (140ish)
CBC - Normal, sometimes low MCV
Vit D - Low
Renal Ultrasounds - Normal blood flow and size
Abdominal ultrasound (back in late feb) - Normal. Also had one in either March or April for my kidneys (Urologist performed). I would assume they would find something with my liver there maybe as well?
Heart Echo - Normal
Rheumatology - Normal
Mono - Negative
HIV - Negative
B12 - Normal
Cystoscope - Normal
Urinalysis - Always micro RBC. Sometimes mucus and sometimes hyaline casts.
So I have no idea what is going on and neither does my wife nor family. Is it possible that this could be liver related? I'm thinking because of the mental changes, pain in liver area front and back, muscle wastage, and
lack of appetite/nausea that it is at least plausible. I have no jaundice whatsoever (my eyes are very clear, and my skin appears somewhat normal colored), but I've read that liver problems don't necessarily entail jaundice. Also, I've read that in some rare cases, ALT, bilirubin and other liver indicators can appear normal with scarred livers.
Please let me know what you think. I am so scared that I will die not even knowing what is taking me out. I've thought kidneys because of the kidney pains, liver, cancers and so on, but nothing can be discovered. My biggest fear is some type of heptarenal failure causing my BUN to stay in normal ranges. Do you think I have any chance whatsoever of survival? The ONLY positive things are:
I am still very much mentally aware. I know what day of the week it is and have a decent concept of time still. I may be 1 or 2 days off occasionally on the calendar, but it's not too bad.
I always know where I am.
I can walk and lift things, but am very weak and have no energy.
I still (in my opinion) have good short/long term memory.
I am well enough to type this post.
My speech is not slurred.
I am still alive somehow.
Post Edited (Wlkrdude) : 10/26/2015 4:35:22 PM (GMT-6)