Allison K said...
... Being a Baby Boomer, I was raised using aspirin. ..I really liked that chalky orange taste when I was little too...
Hahaha, I really liked that chalky orange taste too. Like you said, that's all we had back then (I'm turning 67 in a few weeks).
Hey, I wonder if that's why I'm so addicted to Cheetos. They must rank up there as one of the most unhealthy things to eat (maybe #1...lol) but my goodness I love those things.
You and I are similar in how we approached fighting this infection...the big difference I see is that I whined about
it a lot and you don't, but then again...I'm a guy...enough said...hahaha.
I really did approach this almost like a religious zealot. At one point I actually had 45 alarms on my phone/week. That's how forgetful and confused I became, especially during the first 12 weeks while on Telaprevir. The first 2 nights of my 24 week tx. I spent dry heaving in the bathroom...thinking Dear Lord, how am I going to do this and keep down all these meds. The Telaprevir was every 8 hours (precisely) and you had to take at least 20 grams of fat approx 20-30 minutes prior to taking it and I was so, so nauseated all the time. I was max'd out on both Phenergan and Zofran so there wasn't much else to do, although the ginger tea and "real ginger ale" helped out. Telaprevir is highly fat soluble so you had to ingest the fat and give it time to be properly emulsified otherwise you would compromise the absorption and its direct antiviral activity.
Anyway, coconut oil was my savior. I was able to chug and keep down 2 Tbs (30cc) so I got 28 grams of fat in prior to dosing.
Then there was the Ribavirin...and Interferon and Procrit injections. None of it was really difficult, but you had to adhere to a strict schedule and not mess up.
Anyway, as I've said before, it was ugly, but I'd do it again tomorrow if that's what it took.
Life without hep c is a blessing.
I can't say the Ribavirin ever caused me pain while taking it, but it sure caused or made worse other nasty stuff. You're right about
the Ibuprofen though...it is much more effective in treating pain and fever than Tylenol...at least for many people, especially kids. I'm not saying Tylenol doesn't have its place though and for many, it works well.
Like I said, I'd never recommend you going against your doc, but it might be worthwhile to ask why not Ibuprofen?
Ibuprofen has gotten some bad press over the last few years re: a higher risk for vascular events such as heart attacks and strokes. Some of it is deserved, some not.
But one thing for sure, there is no such thing as a free lunch...not with drugs anyway.
Nothing is as safe as we once thought. If you think about
it, we're messing with an incredibly complex organism and when we change or modify our bodies there are always unintended consequences plus there's stuff we haven't even begun to understand.
We just have to be careful, keep trying and hope that the good will out weigh the bad.
Hey! you're rounding the corner and soon will be looking at just 4 more weeks...sweet!
Hang tough...I know that you will. And don't let those 70 little "angels" get to you...hahaha.
2013 / Diagnosed and successfully treated for hep c geno 1b with Telaprevir, Interferon and Ribavirin...treatment duration 24 weeks.
Retired CRNA (aka nurse anesthetist)...approx 35 years experience in the ER and anesthesia.
Exposure was likely a bloody needle stick from a known hep b patient in 1977. Hep B never progressed to the chronic phase...my own, healthy immune system crushed it.