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marsch21
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 1/19/2016 3:48 PM (GMT -7)   
Hello Group

I was diagnosed in Oct 2015 with HCV G/T 2b. I'm 53 years old.

Currently my values are:
V/L = 2.9M
Fibrosure = F4
AST = 49
ALT = 80
GGT = 114
ALT P5P = 93
Alpha 2 Macroglobulins = 447
Necroinflammation = .75

After a battle, I received my Solvaldi and Ribovirin today. Going to start the meds tomorrow. I feel getting these approved was a small victory as my insurance is with Express scripts. I guess I'm sick enough to meet their approval requirements.

Anyway, I was reading a lot here and found some comfort.

If anyone has any tips on the best way to take these meds, that would be greatly appreciated. I became clean almost 30 years ago so I must have had this nasty disease for that long. I quit drinking when I found out.

I work full time and have not disclosed my condition to my employer. My hopes is that I'll be able to continue working as normal. I know my job been suffering a little because of the fatigue and lack of motivation I feel daily. I hope I can turn that around and start feeling better soon.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 1/19/2016 6:35 PM (GMT -7)   
Welcome Marsch! I am happy to hear you will start treatment and soon become cured of Hep C.

Some things to help with riba side effects would be drinking lots of water, eating something fatty when you take the riba.

You also may feel out of breath as the time passes. Anemia is something common with riba. Solvaldi seems to have only a bit of a headache for some. Oh, and if you get heartburn stomach stuff, take something like omeprozole, Previcid, or Nexium. Those seem to take care of that. Also, there is a side effect you may notice called riba rage. It is more common with the 24 week treatment, but you may notice yourself being more edgy and cranky after being on ribavirin for a few weeks.

Other than a lot more water than you would normally drink (we suggest 1/2 your body weight in oz, per day) and something like nut butter on a cracker, or some avacado with the riba....you should be able to eat your normal diet :) We always suggest a heart healthy, low sodium diet for those with liver disease.

The 12 week treatment seems to be quite tolerable and most don't need to alter work or life while treating. Being cured is worth any short term side effect.

Congrats on getting treatment and keep us in the loop as you move forward. Again, welcome to Healing Well! Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

marsch21
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 1/19/2016 7:24 PM (GMT -7)   
Thank you for the welcome and the advice. I'll provide updates. Looking forward to tomorow.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 1/20/2016 7:35 AM (GMT -7)   
welcome to the forum!!!! i recently finished treatment and was lucky with no sides, I hope you experience the same!!all of us in the forum are behind you..
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Post Edited (Barrylink) : 1/20/2016 7:41:41 AM (GMT-7)


Rubi
Regular Member


Date Joined Sep 2015
Total Posts : 79
   Posted 1/20/2016 12:37 PM (GMT -7)   
Welcome. I finished sovaldi/ribaviran 12 week treatment 4 weeks ago. I, unfortunately had some pretty severe side effects, however, many people have littke to no side effects. Try to stay positive and rest when you can. Drink lots of water. I found ginger ale helped with the nausea. It has real goner in it and ginger is known to help with nausea.

Please keep us posted on how you are doing. We're all routing for you.

Rubi
F 59
GT 2
Viral load 5.6 million as of 7-24-15...42 as of 10-21-2015
Sovaldi/Ribavirin start date 9-28-15


"They sicken of the calm that know the storm." Dorothy Parker

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4806
   Posted 1/20/2016 8:35 PM (GMT -7)   
A belated welcome. I've not been well and have been absent from my moderator duties. I'm trying to catch up on the active posts. Will be interested to hear your news during treatment, Hugs, Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 1/22/2016 9:19 PM (GMT -7)   
Welcome Marsch21,
I am new here as I began treatment in December for HepC. I am officially halfway through my treatment today.
That's great you are starting your meds. Best of luck!

getcured
Regular Member


Date Joined Jan 2015
Total Posts : 64
   Posted 1/23/2016 8:03 AM (GMT -7)   
Welcome M12! I began treatment this same time last year also for G2 with Sov. and Riba for 12 weeks. I suffered with headaches, especially during the first two weeks. Although I tried to go without taking medication (prescription migraine medication or tylenol) I ended up taking some medication when needed. Some nausea but ginger ale helped. The headaches got better but fatigue got worse. Luckily, I could get through the day pretty well. At night I was not good for much of anything so I made no evening plans. When I felt good I went out! Just try to get all the rest you can when you can get it. Anytime I felt bad I just reminded myself how lucky I was to be able to be treated! Virus free now and liver has been healing. Good luck and ask any questions that you have here.

woofer4
Regular Member


Date Joined Jan 2016
Total Posts : 35
   Posted 1/23/2016 9:55 AM (GMT -7)   
marsch21, another belated welcome here.
A good friend of mine (in his 50's) was successfully treated for geno 2 with Sovaldi & Ribavirin back in early 2014. (I finished up 24 weeks of Telaprevir, Interferon and Ribavirin at the same time).
Anyway, we both are about to celebrate 2 years post tx. and hep c free!
My friend had some sides...but was able to work as a lineman (electric co.) throughout his tx.

Take the advice everyone else gave and you'll do just fine.
Best of luck.

woofer5

marsch21
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 1/23/2016 12:04 PM (GMT -7)   
Thanks again for the welcomes, stories and advice. Congratulations on your accomplishments. I'm on day 4 now and pretty much feel ok. Last night I had a bit of nausea and was really tired but today I'm feeling pretty good so far. I go on a business trip next week so I hope that I feel good for that.

So it appears that I have a little problem with my prescriptions that I'm trying to get sorted out. Evidently it was submitted to two different pharmacies that both are trying to fill. After 5 phone calls it's still not resolved but I was ensured that my treatment would not be interrupted. Express scripts is not the best company I have dealt with. Their customer service reps, although very nice, really don't know how to fix this or give me a good way to proceed. I received my first month's worth from Premier Pharmacy Services and I will say they are very good. They took it upon themselves to sign me up for co-pay assistance. So it is only $5.00 per month. I'm calling them back on Monday to ask for higher level assistance or a Manager.

I wish everyone a good weekend and for those affected by the storm on the east coast stay safe and warm.

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 1/24/2016 7:34 AM (GMT -7)   
The same thing happened with my prescription. Express scripts contacted me to fill my prescription but had the amounts of everything wrong. They stated that I would be receiving 200 mg of ribavirin instead of the 1200 the doctor ordered. I don't know where they get the information, but I spoke to my nurse and she told me they had attempted to go around the doctor's request of another pharmacy filling the prescription.
Express scripts is my regular prescription policy. I'm not sure how the doctor arranged for Medico to provide the prescription.

Allison

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4806
   Posted 1/24/2016 7:47 AM (GMT -7)   
marsch21

Mike took a different protocol, Sovaldi and Olysio. He had had a really rough time with Riba in 2009 with INF...that was awful for him (and the whole family....he was very grumpy). This time he did not have sides, cleared in a few weeks, and actually felt BETTER on the meds than he had in a long time because that ****** virus was GONE.

HOWEVER, remember that you liver has been damaged, your Fibrosis score was 4, so that isn't going away soon. Liver cells that are not cirrhotic may regenerate and that would be great. All in all, you will have STOPPED the destruction of what is left of your liver. Like you, Mike had Hep C and drank alcohol. Congrats to BOTH OF YOU for putting that aside. If you continued to drink with a damaged liver, it could get worse, even with the Hep C gone.

I think this is going to work out for you, especially since your Viral load wasn't' through the roof at the outset of treatment.

Best luck, Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

deidi
New Member


Date Joined Mar 2016
Total Posts : 2
   Posted 3/7/2016 11:44 AM (GMT -7)   
Rubi, I was wondering how you are doing?  Are you still having side affects?   My Mom did not do well on this medicine, and I'm trying to get an idea of how many people had a bad time with it.
 
Thanks.

marsch21
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 3/9/2016 8:50 PM (GMT -7)   
So now I've finished 7 weeks of a 16 week treatment. I think I've been tolerating it pretty good. Some days I'm very tired but overall I can feel some energy returning. The good news is that I was undetectable at 2 weeks. My values are getting back in the normal ranges. Go back on the 23rd for my next checkup. Hope everyone's week is going good.
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