What a sad situation. I am so sorry to hear about
your ex-husband and his decision to continue drinking. This is baffling and tragic.
Alcohol on a sick liver is like gasoline on a fire. The only cure for cirrhosis is a liver transplant. Unless he is able to remain sober for 6 months and meet other medical criteria, he is not eligible for a transplant, as you know.
Ziff had a similar situation to your ex. I am giving you and yours a link to Ziff's Alcoholic ESLD thread www.healingwell.com/community/default.aspx?f=25&m=3293465
Like Mama's husband, my guy, themister, does not have much ascites. He does have lower leg/ankle swelling. ESLD looks about
the same regardless of what got one to that point.
Themister has cirrhosis from Hep C. He was able to eradicate the virus, but his liver was too damaged to survive without a transplant. He has been on the list for 2 1/2 years...waiting for his MELD to be high enough to be at the top of the list.
My husband's hepatologist suggest a TIPS (due to bleeds) while he waits for a transplant. He likely would not have survived more bleeds. He was referred for a liver transplant, and TIPS is known as a bridge to transplant. That was 3 years ago. I don't know why some are given TIPS and others are not, but your ex may wish to discuss this with his hepatologist. Here is info on TIPS www.radiologyinfo.org/en/info.cfm?pg=tips
There are side effects TIPS causes in a good number of cases. Hepatic encephalopathy (HE) can become a big challenge. My guy no longer drives, works, nor knows when he will have significant HE. We try to make sure he is never alone. He has been hospitalized for days with HE, had hepatic seizures, turned blue and appeared to not be breathing. This is pretty scary stuff.
People with cirrhosis can get HE without having a TIPS, and here is a great documentary on HE you may wish to pass on for his family that now cares for him. www.hesback.com
Here is a link to our Hepatitis Resource section. www.healingwell.com/community/default.aspx?f=25&m=52986
I strongly suggest Alanon for you and your family members.www.ola-is.org/
And this is an online support group I can suggest to all of you. www.soberrecovery.com/forums/friends-family-substance-abusers/
I hope your ex will decide he wants to live more than he wants to drink. My very best to you and your family members. Big Hugs
Wife of themister, a fine man living with ESLD. Transplant list-2013
“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran
Post Edited (themiz) : 2/1/2016 6:24:27 PM (GMT-7)