Hi, this is my first post. My husband has been diagnosed with End Stage Cirrhosis. He had a bout with a coma in 2001. He has not been drinking for years. We have a 9 year old son. In November he started putting on fluid everywhere except in the arms, neck and face. He was put on lasix and aldactone, without relief of the fluid. He gained 30-40 lbs, in about
a month and got to the point he could not handle the pain, muscle cramps. He was scheduled to see a Gastro doctor but it was too far off and we ended up in ER. He stayed in the hospital for a week. He had a CT scan of the abdomen, 2 paracentesis (10 Liters)in a week. He had a ammonia level of 59 during his stay in the hospital. I noticed he was very forgetful and a little confused, and he was stumbling a little. He was put on lactulose during his stay. Since then it seemed his confusion got worse the fluid was building up quickly and needed another paracentesis in less than 2 weeks, A Gastro doctor told me he was full of air,
and double his aldactone to 200mg,he did'nt get another paracentesis til after the Christmas Holidays. This was 2 days before Christmas, I felt liked he neglected my husband, and caused him to suffer more than necessary. Two days after the Holidays another Gastro Dr. ordered the paracentesis, this time they took off 61/2 liters. He was admitted back in the hospital after a week and a half, his lab was drawn and his K+ 6.9, I took him to ER because of his pain and then found out the lab values drawn earlier. This time he was in the local hospital a week with high ammonia levels to the point of total confusion. A very good social worker got him into a Memphis hospital for a evaluation for a liver transplant, he has had most of the medical testing while there and now we are waiting for our consultations from the rest of the transplant team. We spent a week away from our son. We just have so uch trouble with the encephalopathy it is unreal, he takes 45cc of lactoluse 3 times a day and sometimes more, it keeps him more oriented but never totally normal. He sleeps most of the time about
20 hours a day. I have very little family support and sometimes I just feel like I am totally going to lose my sanity. I am afraid to go to work, which I work only on the weekends and at night. He is just so unstable.