Hi Frightened, The pain is very severe a lot of the time .There's nothing you can do sweetie. The look in his eyes is Scarry I know.It's not that he doesn't want to be here anymore, just that he gets so sick & tired of being sick & tired.I feel this way too many times. we see the toll all this takes on our loved ones.Frightened,T, is right you can't do it alone. If you don't take a break you will get burned out then you won't be any good to either of you. On his bad days or whenever can you get a friend,family member or some type of caregiver relief to get out for awhile? Both you & Steve need this. Even 2 or 3 hours a couple times a week.If you can do this then Steve won't feel like he's being a burden. It's not easy for either of you sweetie,& being a caregiver isn't easy.Especially even more so if there is hepatic encephalopathy involved because our personality changes can sometimes be more unbearable than the liver failure. Even tho we don't remember unfortunately our family & freinds don't forget.Honey you can't let the how much worse take over, you need to put faith & hope in the better.I haven't heard any family members or friends talk about
the hepatic encephalopathy much, I can tell you this when it's comming on we are kinda aware of the changes in personalities but because of the disease we are unable to control it,same thing with the hallucinations.When my husband gets frustrated & angry about
whats happening to me he tells me he's taking the dog for a walk ,then he takes his beach ball with him & kicks the crap out of it to vent. Sometimes we just need to go in the bush & sream. Point is if you don't take a break & let you frustation out somethings going to give. Don't forget we are all here to listen & talk to you anytime. I salute you dear lady for the role of a caregiver is not an easy one especially for a spouse. Your a very special woman. Stay safe & stay strong dear one. My heart goes out to you & my thoughts & prayers are with you both. later....
Post Edited (lerie) : 1/26/2006 2:33:35 PM (GMT-7)