Hi Loujay: Just ask for records, I have quite a file full. It some how helped my mental status to have them. I have also collected all my liver scans and MRI.
I also have a small tumor on my liver ,so they do a CT scan or MRI , blood work, ... every 6 months I have almost the exact symptoms as you . The same diagnosis Cryptogenic ESLD. Some of my problem is the encephalopathy due partially to the high ammonia levels in my blood. I did have hep A when I was about
6 years old.
Please excuse my mistakes.
I was listed for transplant for about
3years . Then I was told I no longer qualified because my meld score is usually below 10. But I have to continue going to the clinic 600miles away .
I was given 48hours - a possible 5years. That was 10 years ago. That's when I decided join my friends here at Healing Well in 2006. You may understand how I began my journey. Hope I can be some help. Just remember "The Greatest is Love" [ lavender ]
[ june17 ]
Post Edited (lavendar) : 3/23/2016 4:01:04 PM (GMT-6)