48 years old..Severe Alcohol Hepatitis....drank for 20 plus years

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A.Ziffle
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Date Joined May 2011
Total Posts : 2072
   Posted 1/16/2017 1:32 PM (GMT -7)   
Ziff? .....Been busy mhump. No rest for the wicked they say. Just had a appointment with my Gastro Doc. He seemed a little ticked off at me (I have that effect on folks). After a thorough verbal assault over my confessed sodium increase (Salt) he reminded me how thin the ice I tread is. Ahh... had worse spanking from higher pedigree professionals. I Humbly apologized for my lapse and he scheduled a Sonogram and Endoscopy. Did the Sonogram for TIPS flow and fluid check. Hesitant about that final recommendation of Endoscopy though. Had one done a couple years ago and a MRI every year since.
I called my Hep Doc. at UNC and the coordinator. Not gotten a answer for what they would like me to do yet. UNC schedules yearly testing and recommended I see a local Gastro in between. UNC is a 3 hour trip one way and costly. I can drive 20 minutes and have the same work done here in my area. The results are still monitored by UNC so it's cost effective and he's a decent Gastro (Had several bad experiences with prior Gastro docs, One dang near killed me). I am very cautious of advice and medications they recommend. That's just a personal opinion.
All else seems fine. Glad to hear your muddling along also. If ya can stay away from the Alcohol and don't piss your Docs. off I suspect you'll be fine. I believe we know our bodies are headed south long before we get help. It's admitting we aren't educated enough to diagnose the real problem or admit we can't control our own destiny. More so the latter. A prideful pig headed sort, Us drunks that is. Just a reminder. PPM has equally personal experience's on both sides of the fence (Caregiver/Patient). I don't think he'd steer you wrong. Take care bud.

A.Ziffle

mhump
Regular Member


Date Joined Mar 2016
Total Posts : 43
   Posted 1/18/2017 2:58 PM (GMT -7)   
Ziffle!!! so glad you are doing good...I took a break from the site. Had a couple of test did, like an EUS. I still work a full time job, so I really have to get rest. But you are exactly right about the Gastro doctor...mines is not all that good either...I tried to change him and they said no. I can fight that and have him change because tricare doesn't play that stuff but just haven't yet. Well be safe and enjoy life, yes PPM seems to be very knowledgeable and cool...peace

ppm guy
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Date Joined Apr 2010
Total Posts : 1115
   Posted 1/18/2017 6:52 PM (GMT -7)   
Hey mhump
How did your EUS come out?

Glad to hear your doing well. And congrats on keeping the plug in that jug. 14 months sober. Stop by and let us know how your doing.

Peace brother

mhump
Regular Member


Date Joined Mar 2016
Total Posts : 43
   Posted 1/21/2017 12:02 PM (GMT -7)   
The EUS came out good...he did see some scaring but he said all ducts was good to go....he said the gallbladder looked good as well. I think am getting HE because I have slight headaches and brain fog. I also notice when i eat my head feels strange and sometimes it seem like I want to black out or something...what should I do?


thanks in advance

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1115
   Posted 1/21/2017 8:04 PM (GMT -7)   
Hi mhump,
Did your dr tell you why he wanted the EUS? Where was the scarring??

I read your posts from last year and see you were diagnosed with Budd chiari syndrome. And you also stated your doc was contemplating a venogram. Wikipedia says cause can be occlusion of hepatic vein.. with symptoms of upper right pain, ascities, and liver enlargement. On 4-13-2016 you stated you had a ultrasound, that showed a enlarged liver.

How are your kidneys doing?

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1115
   Posted 1/21/2017 10:16 PM (GMT -7)   
Also, if you feel as if you're going to black out.. contact your dr or advice nurse(if the VA has them).

Stay safe brother

mhump
Regular Member


Date Joined Mar 2016
Total Posts : 43
   Posted 1/21/2017 10:47 PM (GMT -7)   
PPM...last year was a bad year, I was scared and reading everything on the internet. With internet searching you can think you have an illness and over react. So I self diagnose with budd chiari syndrome it was me jumping to conclusions.

I was diagnose with Alcohol Hepatitis a mild case I guess. It took a year for it clear up because I feel pretty good. I was having pains in my left side under my rib cage and the pain kinda went around to my back. My Gastro doctor sent me for a EUS to check the pancreas, that is when he saw scarring but ducts was all clear. I have to say the pain did go away.

Now I'm having foggy brain and headaches. I take lactolose because with the AAH I was constipated and still is. I feel my liver is hardening up, can you feel that or am I just making this up in my head? also I feel pain from time to time but it seem like it's going away.

I did a fribroscan back in March 2016 it didn't show anything, but in April I did an biopsy and it show mild Fibrosis. I wonder can mild turn into cirrhosis? one of my test still be slightly elevated, can't remember if its the ALT or AST...plus my bilirubin be slightly high too....

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1115
   Posted 1/22/2017 12:07 PM (GMT -7)   
Mhump,
Many people do exactly what you have done.. no big deal.

OK!!! The scarring is on the pancreas, and you have pain under ribs, that goes around to your back. You feel discomfort after eating..
Has your doc mentioned "pancreatitis".

I think your doc is checking for that possibility.
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