m a s:
Welcome to the HW hepatitis forum. WE are sorry you have had to find us, but here we are.
We have had a few transplanted at Mayo in recent years, one lived nearby and one flew in from elsewhere.
We are Florida residents and went to UMiami/Jackson Transplant in Miami for Mike's evaluation. The evaluation was stretched out for us because Mike needed to do 6 months of alcohol cecessation before he could "get on a list." He want to AA 3 - 5 times a week, every week, except for when he was in the hospital. He was IN Patient about 1 week a month for this or that---kidney failure, very low sodium (hyponatremia), crazy HE (hepatic encephalopathy), pancreatitis, etc. They did like one or two things each time he was there:
many many vials, very often before and after TP
Cardiac Catherization and cardiac clearance
Nephrology clearance with tests, etc.
Oncology clearance, he had a small tumor in the liver (if tumor over 5 cm, you can't get a t!)
--he saw a doctor locally several times. She wrote a letter that said he was psychologically ok for a TP (some find it traumatic) and he was unlikely to relapse on his sobriety (he is sober over 6 years now)
--Mayo won't take Medicaid and is particular about which insurance you have.. A rumor says they take limited HMO type plans. Be very careful about this. Miami took Medicaid thank goodness.
There is a SEARCH selection on the blue bar above. YOu can put in any key word and sit will take you to old posts on that topic. Ify ou want to follow Mike's journey, put in my screen name "Mama Lama" and go back to the period October 2010 to mid 2011 and I think I posted all the grim details over several worrisome months.
Good luck to you both,
Once he "got on the list" and his 6 months were up he zipped to the top of the list as his MELD score was above their average transplanct points. He got tumor points which was the one good thing about the cancer diagnosis.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.