Posted 8/23/2016 12:11 PM (GMT -6)
your scenario is much like themisters that themiz used to post about.
You can go to the SEARCH up on the blue bar and type in themiz and her old posts will collect in one place...read through a bunch of them backwards.
he was very ill with hep c and finally cured in the olden days with a horrible interferon treatment, he was very compromised by the hepatic encephalopathy, and was sleeping so much and not making much sense.
but his meld score was below 20 and others got the livers before him.
my partner mike's path was much the same, only he was a drinking man AND long time Hep C infected. in 2003 he was dx with cirrhosis and told that alcohol free with Hep C, he could easily go 15 years before "he got in real trouble." well, he heard the part abouit the 15 years and took up drinking again. that old crusty liver lasted 7 years and he gave it quite a work out...drinking more than every...daily, lots.
then he crashed, fast. we got him to a liver center and they told him to put his affairs in order and he had 90 days, tops bar transplant. his meld was 26. he was making NO sense and could barely dress himself or find the toilet in time.
so...as a drinking man he had to do 6 months of docuumented sobriety, have a 1ce a week ethanol blood test, or go to a boarding rehab. Since is was so sick I was afraid he would just die in rehab, so he agreed to do AA and the blood work.
He did the testing for transplant IN the hospital a bit at a time as he was hospitalized about a week a month until his TP. We thought he would surely pass every time he got admitted.
His rescue was the tumor in his liver...a tiny hepatocellular carcinoma....he got tumor points on his meld score and moved to the top of the list. you every see a patient and loved ones GLAD for a cancer diagnosis? Well, that was us. They brought tissues into the appointment sure we would sob...nope. Withing a month he was transplanted and so...he lasted 8 years between dx and lived to tell the tale. He is now 5 years and 3 months post tp. He qualified for hep C meds AFTER TP and is clear of that now too.
So, there is time, there are meds to get you through.
I'm sorry about the financial stuff...many face the same here. We went through most of our retirement savings before Mike qualified for assistance. The hospital helped out a lot.
I wonder if your church or other philanthropic organization in your community could help with visiting during your work hours? While waiting for TP could you get hospice help or medicaid help at home? It is hard...I cried every day for years...he was often ugly and mean with the HE, that was the worst part.