Hey everyone. As I posted in ML's latest thread, I haven't been around here lately and to quote ML, it's been a bummer summer (and spring).
Treated for diverticulitis x2... Symptoms started on March 7.
Nausea, food intolerance, abdominal cramping, intermittent loose stools and about
a 20 pound weight loss in about
5 weeks time. CT in late March (after tx with Flagyl, Ciprofloxacin and then changed to Augmentin as I had a probable allergic rxt. to the cipro and had to stop it after 2 days)...CT showed diverticulosis...particularly in the descending colon and sigmoid.
No diverticulitis...but then, I was just treated for it.
Also showed what looked like a couple cysts in left kidney and an approx. 1 cm lesion of low attenuation in the tail of the pancreas...appearing cystic, but no previous scans for comparison.
Same symptoms continued...nausea 24/7 and food intolerance just horrible.
Made appt with my GI/hepatologist and somehow the office goofed and I saw his PA.
Nothing against her...she took great care of me after I started my hep c tx.
She doubled up on antibiotics (14 days) thinking I never cleared the diverticulitis...certainly not an unreasonable intervention.
Anyway, my symptoms continued to worsen and the 20 lb. weight loss which had stabilized for a number of weeks also began again...to a total of 30 lbs...
Starting weight was 200lbs.
Honestly, I'm healthier at 180...probably ideal for me at 67 yo and 6'2"...just a really crappy way to lose it.
I insisted on another CT...again nothing acute....read as a stable scan and showed "redemonstration" of the pancreatic tail lesion.
Finally got in to see my GI doc (fantastic clinician and a wonderful human being).
I described my symptoms and showed him the CT reports.
(I don't know why he didn't see either CT previously, but nothing is perfect in this life, plus this man is probably responsible for saving my life...if it's to be saved...and it looks good for me right now)
He immediately noted the pancreatic lesion and said "I don't believe this is diverticulitis".
Aug 10...had an endoscopy, esophageal ultrasound and biopsies of the pancreatic tail lesion.
Came back as a neuro endocrine tumor (NET) and malignant.
After 40 years as a nurse anesthetist and many years in the ER...well...I've never heard of an NET. My daughter (surgical resident...only a bit over a year out of med school) said she was told she'll never see one in her practice. Pretty rare bird.
I'm told these tumors cause lots of problems (release of large amounts of hormones). The good news is my GI said mine is totally fixable...looks 1.4-1.5 cm at most, discrete (no spread)...no lymph node involvement.
Said this will require a distal pancreatectomy/splenectomy.
The pathology/cytology report shows positive markers x3 for neural cells only...no other tissue. It was negative for epithelial cells...so no adenocarcinoma.
My daughter said this is great news and bodes a really good prognosis.
My son (nurse anesthetist) at Lahey Hospital and Transplant Center (Burlington-Boston) called in favors...hooked me up with the best (one of the best on anyone's list) transplant surgeons (liver) in Boston...and who also specializes in pancreatic tumors. My son also hooked me up with his favorite anesthesiologist...he claims one of the 2 best out of 37. His 2nd choice agreed to be "backup"...hahaha.
Anyway, will have my consult on Aug 29 with my surgeon and oncologist and I'm already booked for surgery 4 days later on Sept 1. Looks like approx 7 day stay in the hospital...best guess anyway. Hopefully headed back home on Sept 25...wife already bought my ticket home...gotta love that woman.
Keeping fingers X'd and I'll have my fantastic family...wife, son and daughter with me in Boston. My daughter will have to make up some residency hours, but not too bad. They told her "whatever you need". Right now she's planning on Aug 24-Sept 3 in Boston.
Anyway, will post back with any news.
Still Hep c free (undetected) almost 3 years now!
Thanks for letting me vent...and thanks for letting me run on...and on...lol.
Hope everyone is doing well..or at least ok.
Post Edited (woofer5) : 8/19/2016 9:26:37 PM (GMT-6)