Overlapping Issues: Liver, Kidneys, Back...sooo tired.

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New Member

Date Joined Aug 2016
Total Posts : 1
   Posted 8/21/2016 10:11 PM (GMT -6)   
I have had Hep C for 20 years. No symptoms but recently I have had all kinds of problems. My RBC was 2.9, WBC was 2.8 and I had a bout of kidney infection that got in my blood stream. (103.7 fever!)My platelets were borderline low (139) and when I got sick, platelets dropped to 86. I also have dark urine and light colored stools. My gastroenterologist sent me to a hemotologist who thought I could have Paroximal Nocturnal Hemoglobinuria. Now, after the kidney infection, I am so tired that I can't seem to even get through making dinner. I see people talking about riding bikes, exercising and taking walks but I have trouble going to the mailbox! Gastro guy says that I will be elegible to start treatment for the Hep C in 3-4 months. I also have a slipped disc, spinal stenosis and a compressed nerve and am scheduled for spinal surgery in November. I think I should wait until I have the Hep C treatment but I am in a lot of pain. I don't take pain killers or Tylenol because of the Hep C. I really don't know what is best. I'm a mess! Can someone advise me... Could this all be because of the Hep C? ALT and AST is normal and no signs of cirrhosis. I do have an enlarged spleen and I had C-Difficle for 3 years so I have other Gastro problems from that. Don't drink or smoke either and haven't since my diagnosis. I was a regular blood donor so I can pinpoint my exposure to within 6 months.

Post Edited By Moderator (MamaLama) : 8/31/2016 7:24:55 PM (GMT-6)

ppm guy
Veteran Member

Date Joined Apr 2010
Total Posts : 1225
   Posted 8/22/2016 12:37 PM (GMT -6)   
hello tootired,
sorry about this problem. but welcome to our forum..
you have a lot going on. getting to core of your blood count deficiencies, seems most important.. has your kidney infection resolved?

my only experience with low blood counts, came from hep c treatment.. old school tx. chemo style drugs that ocassionally required the use of epogen and neupogen. these drugs were necessary to beat back anemia, and neupogen to boost WBC and ANC, for fighting bacterial infections..

glad to see your getting ready to treat your hep c. can you wait to start tx?? What is your stage of fibrosis? if your liver function is normal, I would fix the blood count issue first. let me know whats happening.

Forum Moderator

Date Joined Oct 2010
Total Posts : 4838
   Posted 8/31/2016 9:13 PM (GMT -6)   
too tired...

I am so sorry to hear that you have multiple issues. Many on this forum do. My partner, Mike, has had so many things go wrong and one has to prioritize. The fact that your liver function tests are good is fantastic given that your other labs are not.

Mike has had cardiac, kidney, and back issues. But he makes the hepatologists take the lead every time as after he needed a liver transplant in 2011. His nephrologist defers to transplant. Seems the meds for antirejection are tough on the kidneys and we have a sort of joke...there is dialysis for kidneys, but nothing for a bum liver. the Nef promises him a kidney next if it comes to that. His back surgery is scheduled for this fall...and he is not looking forward to another rehab, but he is in a lot of pain and really wants to get on with his life...post hep c, post liver transplant, post aortic valve replacement, post 3 rotator cuff surgeries, 2 incisional hernias.

The fatigue you are facing is pretty typical of liver disease. Get as much rest as you need. Best to you, we are here for you.

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
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