Sis, I think the tiered care you have planned sounds good. Local care during the 6 months. Make sure he goes to meetings or to his counseling sessions. Talk to the social worker at the TP center to be certain you are getting whatever documentation they want to see about
the sobriety. they liked Mike's big calendar he got at Staples and had the AA group leader sign after each meeting. One fellow here missed one counseling session because he was at the ER and they made him start the 6 months over again.
There are meds that help the pre TP patient that your local Hep certified doc should know about
. And they should do his bloods often. Mike wound up in the hospital a week a month during that month wait. He would get a load of stuff in hospital...electrolytes rebalanced, some albumin, and re-evaluation of his hepatic hypertension...it is different than regular hypertension and can cause veins in the esophagus to rupture and bleed (this is a 911 emergency...you'll know if it happens). There are meds for hepatic encephalopathy. This is when the liver can't clear wastes from the blood and that gunk gets in the brain and makes the patient a bit on the crazy side. There is lactulose which is inexpensive and Xifaxan which is very expensive. Both help a lot to keep the stool soft and flowing out of him. The Xifaxan is an antibiotic that helps clear out the toxins somehow. Mike was cranky, disorganized, forgetful, rageful, etc. The morning after his TP he was back to normal.
We had a problem with the local hospital. They didn't seem to know what to do. So I started taking him when he was bad to the ER at the TP center. The docs got to know him and our family and guess what...they started is TP evaluation BEFORE the 6 months and he got his new liver 6 months and 1 day after that clock started to tick. It was a close race...he almost did not make it, but UNOS has rules. 6 months!!!
Wishing your family the best.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.