Transplant referral

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denverdoni
Regular Member


Date Joined May 2013
Total Posts : 62
   Posted 11/7/2016 8:28 PM (GMT -7)   
Hello, I haven't visited this group in quite a long time since I was treated for HCV and have been 18 months SVR. I was hoping that my cirrhosis would maintain as compensated for at least a while longer but suddenly several months ago I started having ascites and a lot of pain, fatigue, difficulty breathing. I went to the ER for the pain and my hepatologist said he wants to refer me for transplant evaluation now. I have had 4 endoscopies with banding for large varices from portal hypertension as well, but have not had a bleed thus far. My MELD is 15 and Child-Pugh is grade C, decompensating.

This is sooner than I was hoping for, but they are supposed to call me next week to schedule the evaluation soon. Can anybody who has been through this tell me what to expect? I'm pretty scared right now and it would help to know what the evaluation is really going to involve.

Thanks for any help or advice. I'm still praying that this is going to improve a little since I'm on spironolactone and lasix now and trying to lower my sodium, eat healthier and cutting out red meat and sugar as much as I can.

One more thing, I haven't been told to limit fluids but I wonder what is really the optimal amount of water to drink each day?

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1116
   Posted 11/8/2016 4:07 PM (GMT -7)   
hi denverdoni,
its been over a year since we have heard from you. sorry it has to be this way. I remember you had cleared hep c, and had compensated cirrhosis. I looked back and saw that you had portal hypertension, and varices at the time you reached SVR. im so sorry it went the wrong way.

Im not the person who has been thru the evaluation process. But I am going thru it with my twin brother. he developed liver cancer. He is currently getting chemo embolization, and treatment to get one of his tumors under control.

Hopefully your diet, and use of diuretics will help with your discomfort. I would ask your dr about how much water is appropriate for you.

Hopefully some of the others will see this and jump in. its been really slow around here lately with, hep c easily treated. I check the forum most days, and if I can help you research anything, or be a listener, just ask.
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