When Mike's biopsy came back with cirrhosis (stage 4) in 2003, his doc told him that if he remained alcohol free, and took his meds, he would not be in transplant danger land for about 15 years. He did not remain alcohol free and was in rough shape in 7 years. Now post TP he is doing well, but he still had Hep C for 3 years after TP and started making a mess of the TPd liver. However, with the meds curing the Hep C and his liver not cirrhotic, he was able to repair some of the damage and the liver can heal itself. I would think on enough AIH meds you could extend your life considerably.
Also, he felt guilty about using a liver that could go to a "worthy" person...he felt he was not worthy because he had liver disease from drug use in the 60s...when who knew what we know now about spreading Hep C, they had no name for it then.
I sort of look at this thinking you are unique and your history could help other AIHers post TP to see what outcomes are possible with second transplant. What if they learned how to do things better because you gave it a try? Well, just looking on bright side. You have to make your own decisions.
I have a rare form of cancer that could require a very major surgery...remove spleen, gall bladder, female organs, parts of colon, anything I could do without, then wash the open abdomen with chemo and sew me back up. feeding tube for months, etc...and I am pretty certain that at 72, I would not make the choice to do that...but so far, I am good...and will wait out a decision until it "is time." Then I will see
how I feel.
Best to you,
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.