I am suffering from Hepatitis C. What can I do to minimize damage to my liver?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ArabellaW
New Member


Date Joined Jun 2017
Total Posts : 1
   Posted 6/6/2017 4:26 AM (GMT -6)   
I have been diagnosed with Hepatitis C, so looking for ways to protect my liver with HEP C and prevent fatal complications.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4838
   Posted 6/9/2017 11:38 PM (GMT -6)   
Welcome to the forum ArabellaW,

I am sorry to hear that you have been diagnosed with Hep C.

Where once this was a dreadful diagnosis, there are now medications that can cure the virus.

And if your virus was recently acquired, you may not have serious damage yet.

My partner, Mike, contracted Hep C long before it had a name or treatment...in the late 1960s. He didn't become ill until 2003! So that virus was in there causing all kinds of problems for a long long time. Once diagnosed there WAS a treatment that was difficult and did not cure more than half who tried it. He did poorly and the Hep C continued damaging his liver.

By 2010 he was in terrible shape. They said he was in End Stage Liver Disease with all the symptoms: fatigue, sleeping during the day, restless at night, confused with incephalopathy, he had edeme fron his ankles to his knees (some have swollen belly too), he trembled, he had leg cramps in the night, etc. etc. We got him to a Hepatologist at a major medical center and although he was dying, they put him into a Transplant Program. BUT, he was drinking alcohol...so he had to sober up for 6 months before he could qualify.

So long story...if you have been recently diagnosed...it would be years and years before you got this sick. If you have been infected for al ong time you need to get started on a treatment program. Find a hepatologist or get a referral from primary or a local GI doctor. They will figure out where you are. And the new treatments, a pill or two a day with few side effects, can cure your liver.

After Mike's transplant he still had the Hep C and it started doing damage to his new liver. Oh, NO. But once the new treatments were approved, he was once of the first to go on them. He was cured the first time...So now he just had his 6th anniversary post Transplant, and 3 year anniversary Hep C free.

Things you could do to make a difference: No alcohol. (Mike's doc says also to stay away from high frutose corn syrup in ingredients because it digests the same as booze.) Easy on the red meats. Limit salt intake.Lots of fruits and veggies. Keep your wt under control or lose wt if you are overweight.

I am hoping this is a recent diagnosis and you can get on top of this quickly. Come back to see us if you have more questions.

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

LisaInIndiana
Regular Member


Date Joined Jan 2018
Total Posts : 135
   Posted 3/9/2018 4:04 PM (GMT -6)   
My husband had Hep C but was recently cured with Epculsa from the VA. Before the treatment was available, we were told that the best ways to keep your liver healthy was to stop drinking, limit greasy food, avoid stress, avoid tylenol and other meds metabolized by the liver, and drink water.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1224
   Posted 3/9/2018 4:43 PM (GMT -6)   
You should have your hep c evaluated. The sickest get treated 1st..

I had hep c for 45 years, before the new drugs were available.. its a slow progressing infection. I had to quit drinking and eat better, while waiting for a cure.

Let us know what you find out

bijoux.51
New Member


Date Joined Mar 2018
Total Posts : 1
   Posted 3/9/2018 6:23 PM (GMT -6)   
I acquired Hep C in 1981 and diagnosed in 2002. Since then I have gone through 4 treatments that did not work with many side affects. In 2016 I did a Harvoni treatment for 6 months without side affects and was cured. A year later I was diagnosed with liver cancer. I am currently going through cancer treatments (I was told that this was not a cure) to buy time before I can get a liver transplant.

My only advise is to not drink any alcohol, avoid red meat, fast foods, boxed foods, canned foods or frozen meals. Keep sugar and salt intake down and drink lots of fluids.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1224
   Posted 3/9/2018 8:17 PM (GMT -6)   
hi bijoux, sorry about your cancer dx
have you been evaluated at a transplant center? What have you been told?

my brother also has liver cancer. he was evaluated and approved. at his 3 month check his tumor got bigger, and his AFP went over 500. 500 is the threshold for transplant. he was no longer transplantable. that's when he started treatment with nexavar.

I have not heard of cancer treatment while waiting for transplant..please let ne know.

if you start a new thread, you will get replies if you want.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4838
   Posted 3/9/2018 9:57 PM (GMT -6)   
bijoux,

There are exceptions made on the waiting list for certain liver cancer tumors...giving you extra "points" on the list.

There is quite a bit of information on the UNOS websites. Check it out.

If the tumors get large, it can exclude the patient from TP.

When Mike was waiting in 2010 - 2011, finding a tumor moved him up on the list and he was transplanted in time.

Best to you,

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

LisaInIndiana
Regular Member


Date Joined Jan 2018
Total Posts : 135
   Posted 5/20/2018 9:45 PM (GMT -6)   
bijoux, do you know if the liver cancer came from the HCV treatment?
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 11:24 AM (GMT -6)
There are a total of 3,004,664 posts in 329,161 threads.
View Active Threads


Who's Online
This forum has 161747 registered members. Please welcome our newest member, Daf.
218 Guest(s), 11 Registered Member(s) are currently online.  Details
SoMuchFun, Deep_sleep, clocknut, PeterDisAbelard., BillyBob@388, Lynnwood, InTheShop, RunJerRun, F8, straydog, iPoop