Posted 8/5/2017 9:08 AM (GMT -6)
Okay, Alcie, this is what I have lived:
HE is horrible. When the mind is overwhelmed wtih unprocessed wastes that the liver can no longer process, that stuff wanders everywhere in your blood, and to the brain. The affected person can be unreasonable, tired to the point of coma, unreasonable, unable to sleep at night, unreasonable to the point of down right ugly. Mike made me cry almost every day. Some of our members have told crazy stories about HE husbands. One wife got a call at work that hubby was walking their horse on a major highway. His side of the story..."it was too bumpy in the paddock."
And they should not be driving at all NOW, if their HE makes them impaired. Mike hated that and resisted. I would not get into the car with him. We took 2 cars to doctors appointments until the doc told him if he was in a wreck and the insurance people heard he was driving against dr. orders, the insurance would not pay and he would lose everything. Also, get any weapons out of the house...Amendment 2 can wait until after transplant...those badly affected by HE can be a danger to themselves an others.
Hubby may not be complying with his med program because of the HE (remember the unreasonable symptom above). Lack of compliance can get someone kicked off the transplant list. If there is any chance YOU can organize and monitor the meds, it is the only way this may work out for him. Family support is HUGE with TP centers...that they know the person will be complaint. There is such competition for livers, they want to give them where they will do the most good.
If a person is still drinking alcohol, they have to go to a program and get evidence of AA attendance. If you get liver cancer, and the tumors get too big, the chance of post TP issues increases and a person can become ineligible. Yes, the TP can save a person, but they have to pass a psych test too...will the person take their meds, etc. If they are likely not to take them...they may lose a place on the list to a compliant patient..
My partner Mike is compliant. If they say take your anti-rejection meds on a regular schedule, like 7AM and 7PM, that's it. He will never miss that. He was in the hospital with a heart thing a while afterTP and he had a FIT until he got the nurses to give him his prograf exactly at 7AM and 7PM!
Best to your family...
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.