i have been reading your posts, but don't post so often any more. my partner, mike, is 6 years post transplant now and he has had every symptom in the book.
i am so encouraged to hear that you have become so informed about liver disease and really have taken it very seriously. my partner, mike, was (blessed) with multiple diagnoses: alcoholic cirrhosis, hep c, and heptocellular carcinoma.
as I was reading your posts I figured your MELD had gotten up to the 20 somethings...which can be really really bad.
In 2003, Mike was diagnosed with hep c, did the old treatment (yuk, interferon and ribaviron) which didn't work. His hepatologist told him sober he could have 15 good years, even with the hep c. IF IF IF, he stayed sober. he did not. so in less than half that time his meld score was 26 and he was one sick man.
he needed a transplant right away, or else. BUT, as your doc has explained, he needed the 6 months of AA documented sobriety, and was almost too sick to go to meetings. i took him every day and sat in the car as he could not drive, barely could walk. he was his hospital a week a month for those 6 months. they also made him have a blood ethanol test once a week. to be really sure he was serious about wanting to live.
he got his transplant at 6 months, almost exactly,may 1st, 2011. his meld had gone down a bit but once his tumor was identified, it went up again. unfortunately he still had hep c and the new meds were not available yet. so, his new liver started to get infected. in 2014 he successfully was cured of hep c.
and now his liver has been regenerating we think as his fibroscans are really really good and he feels quite well.
mike is 67 years old...you are half that. you have a whole life to live, a lady who loves you, a career and family to have. it would be so wonderful if you could stay on this good path and cure yourself.
i wonder sometimes if I could have made a difference, helped him cut out the booze earlier. neither of drink any more...well, sometimes i have a glass of wine, but not often maybe 1 glass every month...in a social setting. but he doesn't even do that. he was so sick.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.