Thanks so much for your reply. It's really overwhelming sorting through advice. Your words mean a lot to me. My Drs. are great, experienced, and smart but seem to be prioritizing there time reacting to patients as complications arise, which I don't necessarily disagree with. But from my own (selfish) standpoint I would like more specific advice on how exactly to prevent getting worse (if that is even possible).
I do have a Hep Dr, but only one Dr visit so far. I spent most time with his PA who was really great and helped put things in perspective. I do not have a Hem Dr at this point. Perhaps I should ask my Hep Dr for a referral? I am so new to healthcare it's hard to know what to do.
At my appointment the PA told me I have a 3% chance of getting liver cancer and I will be screened every 6 months. He said if they find cancer then a transplant would be a great option for me. However, I wonder if that will change with the low platelets. But when I asked about
my platelets dropping from 67 in April, to 52 in June, to 44 in July he told me not to worry unless they drop below 10 and/or I cannot stop bleeding. As I mentioned before I wish there was a way to be more proactive and prevent the drops. But there seems to be little focus on this or maybe it really is impossible to improve now that my liver is so damaged. I wonder what else besides low platelets would keep me from a TP. And I guess it's hard for me to understand how my platelets were better in April when I was drinking alcohol, eating unhealthy, and 30 pounds heavier. Now that I made these lifestyle changes my platelets are getting worse and so are the other MELD numbers. The PA and others on here have explained that the numbers will bounce around. I just figured it would be good to understand cause and effect so I can take the right actions now and not just wait for something bad to happen. Does that make sense? Maybe I am looking at this wrong though. Perhaps I need to have a better perspective on what I can control and what I cannot control. Again, I am just so new to this.
Also, what are the PSA scores that you mentioned? Are those related to LT?
A few other questions for you or others that may know:
1. Has anyone read the book, "The First Year: Cirrhosis: An Essential Guide for the Newly Diagnosed."
2. Has anyone read the book, "The Liver Loving Diet: Your Best Friend's Guide to Low Sodium and Healthy Protein."
Thanks so much for you help!
Post Edited (Cirrhosis_2017) : 8/5/2017 2:53:32 PM (GMT-6)